Old 08-23-2017, 10:37 PM #1 (permalink)
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Exclamation Extremely Worried

Hello,

My name is Sura and I recently turned 21 and I believe I have been getting symptoms of ALS. I will explain what I have experienced so far.

July 14 to July 20
I started getting twitches all over my body, Mainly just my legs. I counted roughly 10 - 15 twitches per day. Most of them were very quick lasting roughly 4-5 twitches (2-3 seconds).

July 21 to July 22
I went to see a doctor about it. He requested a full blood test. He also noticed my resting heart rate was at 120bpm and also requested I wear a 24 Holter Monitor. Twitches continued and they spread to my eyelids and my neck.

July 23 - July 30
I decided to magnesium tablets thinking I had a magnesium deficiency but it did not help too much, my twitching only reduced by a very little about.

I got my blood results back. It said I have vitamin D deficiency (10 ng/mL). Doctor said take magnesium if muscles keep on twitching although the test did not say I had a deficiency.

Doctor ordered me to take a medicine called Noten to reduce my heart rate.

August 1 - August 14
Symptoms have somewhat changed, Twitching dropped down to 2-4 per day. Mostly in the morning and before I go to sleep.
New symptoms did develop. My Left hand goes completely numb during sleep. It caused me a lot of stress and fear as I woke up many times without being able to move my hand/arm at all. My legs felt like they were constantly buzzing too.

August 15 - August 24.
About 1 week ago, I developed a feeling of a lump being in my throat and me chocking on my spit 1-2 times per day (I do not choke on food or water, I feel like this maybe related to BFS Globus symptoms). I also have been feeling like I'm losing my voice as I cannot hit as high notes as I was able to before. I also noticed that I have a large amount of phlegm in my throat (unrealted to ALS). Twitching is almost completely gone, I twitch about 3-5 times a day but they are usually about 1-2 pulses lasting a second tops. (almost like a spasm). My left hand is feeling somewhat weak (I'm a typist, so I can tell when I'm performing poorly), My hands shake from time to time and I sometimes (once or twice a day) will mess up a word like its a tongue twister.

At this stage I don't know what to do, I went to the doctor about 3 times over the last couple of months and they say it's anxiety when I never felt symptoms like this before. It's at a stage where the stress is starting to affect my work.

Can anyone give me any advice or insight.
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Old 08-23-2017, 11:04 PM #2 (permalink)
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Default Re: Extremely Worried

This does not sound like ALS to me. Shaking, buzzing, and numbness are not signs of ALS. My advice would be for you to work with your doctor to get your vitamin D level up to normal range and also to manage your anxiety.
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Old 08-24-2017, 11:08 PM #3 (permalink)
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Default Re: Extremely Worried

Thanks you karen. I talked to my doctor and started with 1000UI Vitamin D. I hope all this was caused by a Vit D Deficiency
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Old 08-27-2017, 06:39 PM #4 (permalink)
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Default Extremely Worried Upated

Hello!

Here is an updated along with a couple of questions.

My muscle twitching seems to be fading away as however I have developed trouble swallowing my spit, It feels like i have to manually swallow my spit and I wake up with a very dry mouth every morning. I also noticed that I'm out of breath and have to manually take deep breaths to stop it for a little while. Could this be symptoms of Bulbar Onset?
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Old 08-27-2017, 06:52 PM #5 (permalink)
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Default Re: Extremely Worried

Mod note: merged threads. Sura, please keep posting on your original thread.
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Old 08-27-2017, 06:56 PM #6 (permalink)
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Default Re: Extremely Worried

Sorry about that! I didn't mean to cause any problems
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Old 08-27-2017, 07:43 PM #7 (permalink)
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Default Re: Extremely Worried

It doesn't sound like bulbar, no. And non Familial ALS of any kind is exceedingly rare at 21. Bulbar is even more so as it is more common in older patients. You don't describe ALS symptoms but you are displaying a common pattern found in our worried questioners- starting with limb symptoms, finding out they are not indicative of ALS and then starting to worry about bulbar.

As Karen advised work on your vitamin D manage any anxiety and follow up with your gp.

Last edited by Nikki J : 08-27-2017 at 08:16 PM
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Old 08-27-2017, 10:05 PM #8 (permalink)
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Default Re: Extremely Worried

Dry mouth, rapid breathing, and fast heart rate are also consistent with anxiety, which is far more common than ALS. Vitamin D deficiency can also be associated with depressed mood.
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Old 08-27-2017, 11:52 PM #9 (permalink)
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Default Re: Extremely Worried

SyntheticHappiness...

If your happiness comes synthetically... that explains a lot of your symptoms.

Anxiety most likely triggered your heart tachycardia. Your following symptoms pretty much fit the side effects of the Noten you are taking.
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