Factet
New member
- Joined
- Jun 20, 2017
- Messages
- 3
- Reason
- Learn about ALS
- Country
- Us
- State
- CA - California
- City
- San Francisco
Not sure if they will let me post, because they deleted my comment like that once, but they closed my thread and i dont want to make a new one
So i think this is the best thread to ask my question
I am a 20 year old male with no known family history
I've had some twitches in june-july period, was really worried and created a thread where ive been told the usual thing "doesnt sound like ALS go to your PCP"
So i did and she told me that since my twitches are all over the place, im fine and its stress related. I have been stressed out a lot since then.
I decided that alright, whatever and went on with my life, twitches stayed on for a while. At some point i either got used to and stopped noticing them or they decreased. I also had a few bulbar symptoms in june which are gone now for sure and balance problems which are at least decreased
A bit after that i noticed a weird sensation in my hands. When i type and when i hold something, the objects feel weird in my hands. It seems like the fingers are laying differently although i can't see or tell what makes it so. When i look at my hands with objects they may or may not look odd, because i dont know how would i do something before. Like for example i hold my phone in my one hand and my fingers look and feel odd while doing that, and its not like there is some way i was able to hold it that i cant do no more, it just feels odd.
Now the twitching is back (i am still very stressed out too) still generalized. And when i try to measure my muscles they feel different. Fingers on my left hand seem to have less "meat" at some places, although they are still quite workable. I can unscrew the non-super tight bottle cup with my pinky and a thumb and all, but you know what i mean. Same thing with my calf musicles, the left one seems smaller. When i stand on my feet they kinda match up a bit more. when i try to look at them, i still cant tell, one time i can see the difference, one time its harder
I know that measuring my muscles myself is not the best idea, and we are not perfect physically especially when it comes down to our main hands and feet.
But should i maybe again consider getting an EMG (which my PCP told me not to bother with) or should i just forget about it as my age, the fact that the patterns change and that i have more "feels" than "reals" point away from als?
Thank you!
So i think this is the best thread to ask my question
I am a 20 year old male with no known family history
I've had some twitches in june-july period, was really worried and created a thread where ive been told the usual thing "doesnt sound like ALS go to your PCP"
So i did and she told me that since my twitches are all over the place, im fine and its stress related. I have been stressed out a lot since then.
I decided that alright, whatever and went on with my life, twitches stayed on for a while. At some point i either got used to and stopped noticing them or they decreased. I also had a few bulbar symptoms in june which are gone now for sure and balance problems which are at least decreased
A bit after that i noticed a weird sensation in my hands. When i type and when i hold something, the objects feel weird in my hands. It seems like the fingers are laying differently although i can't see or tell what makes it so. When i look at my hands with objects they may or may not look odd, because i dont know how would i do something before. Like for example i hold my phone in my one hand and my fingers look and feel odd while doing that, and its not like there is some way i was able to hold it that i cant do no more, it just feels odd.
Now the twitching is back (i am still very stressed out too) still generalized. And when i try to measure my muscles they feel different. Fingers on my left hand seem to have less "meat" at some places, although they are still quite workable. I can unscrew the non-super tight bottle cup with my pinky and a thumb and all, but you know what i mean. Same thing with my calf musicles, the left one seems smaller. When i stand on my feet they kinda match up a bit more. when i try to look at them, i still cant tell, one time i can see the difference, one time its harder
I know that measuring my muscles myself is not the best idea, and we are not perfect physically especially when it comes down to our main hands and feet.
But should i maybe again consider getting an EMG (which my PCP told me not to bother with) or should i just forget about it as my age, the fact that the patterns change and that i have more "feels" than "reals" point away from als?
Thank you!
