Sidney
Active member
- Joined
- Jan 9, 2016
- Messages
- 98
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- LO
- City
- London
Hi
I have been a regular poster on here and am still in limbo after 18 months.
Yesterday after seeing my pulmonolgist my fvc was lower than ever 3.9.
My sniff test was very good though 138.
The sniff relates to the diaphragm so again this has confused everyone.
I remember though violent fasciculations in my abdomen when all this started.I would lie in the bath with water rippling and causing wavs from the violence of my stomach twitching.
I also have a gap where muscle used be between my chest in a line all the way to my navel.This had been noted by the docs.
I suppose my question is will muscle wasting in the abdominal area result in diaphragm /breathing problems?
I am short of breath and frequently wake at night due to apnoea.
Thank you for your time in advance.
Sid.
I have been a regular poster on here and am still in limbo after 18 months.
Yesterday after seeing my pulmonolgist my fvc was lower than ever 3.9.
My sniff test was very good though 138.
The sniff relates to the diaphragm so again this has confused everyone.
I remember though violent fasciculations in my abdomen when all this started.I would lie in the bath with water rippling and causing wavs from the violence of my stomach twitching.
I also have a gap where muscle used be between my chest in a line all the way to my navel.This had been noted by the docs.
I suppose my question is will muscle wasting in the abdominal area result in diaphragm /breathing problems?
I am short of breath and frequently wake at night due to apnoea.
Thank you for your time in advance.
Sid.