Any advice?
Hi all... I've read a lot of posts on here so I know you all aren't doctors and I know my case doesn't present like usual als presents...
I have had twitches for about 3 years now that I can remember.. It used to be only now and then now it's occurring all day basically... I used to notice it in my left bicep and my right toe and arch of that foot.. now it's in my forehead, ears ( fluttering sounds like moth in ear ), and other places , I have pain in my left shoulder and a dead feeling in my rhomboid area that spread to my right side and in my arm pit and pectoral miscle... left deltoid and pectoral cramp whenever I try to use them.. the dead feeling is now around to my ribs and my back itches like crazy but no rash..
I have trouble swallowing, like my neck muscles feel dead too, not numb to the touch but like they aren't working properly.. I feel strained to just talk.. my voice is not as loud.. It comes and goes..
I also have paresthesia... rythymic vibration in my feet..
I can't say for sure I have atrophy yet but I think it.. It's probably from being too self aware at this point... doc s aren't very good at keeping patients calm.. insensitive is the word I'm looking for..
Ive had chest ct with contrast, head ct no contrast, xray, lyme test, routine blood work, rheumitory panel, lupus, and some more all clear... paid out of my pocket for all of this .. waiting on insurance for neurologist visit and mri...
Kind of worried though because when the dead making feeling I get in my thoracic area flares up I feel like it affects my breathing like my ribs won't expand..
Thanks for any ideas or advice... I'm sorry for dumping this on a forum where you all are knowingly living with als, when I don't have a diagnosis or even had an emg. Thanks for your patience