Hi!
My namn is Johan i'm 34 years old and live in Sweden! Hope someone can come up with some good advice about my current situation. This has eaten me and my family for some time now..
For about 2 months, I have been on several hospital visits without being diagnosed. I have done several blood tests, MRI of brain,throat and spine (all good) the electric nerve test that was normal and EMG..but not lumbar palption.
I have hyperreflexia in knees and feet and my big toe didn't move at all with the Babinski test.
My EMG showed some "neurogenic changes" in the back (what ever that means?) They looked at right and left bicep muscles inside of both calfs, both Tibialis muscles, a needle in the back and one in the cheek near the lips.
In recent months I have had ongoing fasciculations in both of my calfs. Much twitches spread all over the body arms, shoulders, feet, legs. Atrophy that even I see in the hands both right and left especially the thenar muscles.
The joints are cracking in my legs,arms and neck as soon as I move.
No direct pain except cramps at night mostly in my hips.
I get tired of nothing and get muscle soreness real easy.
Since 1 month back, the weakness of the arms legs and hands has become much worse and so all the twitching. As soon as I try to lift something or bend the arms/legs with a little resistance they shake. Being easily breathed and having some problem with breathing at night laying on my back.
Is this obvious ALS/MND?
Can you give me some guidance how to think becouse i'm both scared and don't wont to stress out my family to much?
If you read this far, I just want to say THANK YOU !!
/ A worried Swede
My namn is Johan i'm 34 years old and live in Sweden! Hope someone can come up with some good advice about my current situation. This has eaten me and my family for some time now..
For about 2 months, I have been on several hospital visits without being diagnosed. I have done several blood tests, MRI of brain,throat and spine (all good) the electric nerve test that was normal and EMG..but not lumbar palption.
I have hyperreflexia in knees and feet and my big toe didn't move at all with the Babinski test.
My EMG showed some "neurogenic changes" in the back (what ever that means?) They looked at right and left bicep muscles inside of both calfs, both Tibialis muscles, a needle in the back and one in the cheek near the lips.
In recent months I have had ongoing fasciculations in both of my calfs. Much twitches spread all over the body arms, shoulders, feet, legs. Atrophy that even I see in the hands both right and left especially the thenar muscles.
The joints are cracking in my legs,arms and neck as soon as I move.
No direct pain except cramps at night mostly in my hips.
I get tired of nothing and get muscle soreness real easy.
Since 1 month back, the weakness of the arms legs and hands has become much worse and so all the twitching. As soon as I try to lift something or bend the arms/legs with a little resistance they shake. Being easily breathed and having some problem with breathing at night laying on my back.
Is this obvious ALS/MND?
Can you give me some guidance how to think becouse i'm both scared and don't wont to stress out my family to much?
If you read this far, I just want to say THANK YOU !!
/ A worried Swede