Old 07-21-2017, 01:39 PM #16 (permalink)
Member
 
Join Date: 2014
City: Round Hill
State: VA
Country: US
Diagnosed: 02/2014
Interest: I lost a loved one to ALS/MND.
Posts: 336
codyclan is a jewel in the roughcodyclan is a jewel in the roughcodyclan is a jewel in the roughcodyclan is a jewel in the rough
codyclan codyclan is offline
Member
Join Date: 2014
City: Round Hill
State: VA
Country: US
Diagnosed: 02/2014
Interest: I lost a loved one to ALS/MND.
Posts: 336
codyclan is a jewel in the roughcodyclan is a jewel in the roughcodyclan is a jewel in the roughcodyclan is a jewel in the rough
Default Re: Insights welcome- starting the journey to diagnosis

ALS symptoms don't improve-- I understand it is difficult and frustrating, but you really need to stop searching the internet and diagnosising yourself and wait for your neuro. Ask him what he thinks, don't ask if it's ALS, that could impede the diagnostic process. You really and truly do not describe ALS symptoms.
codyclan is offline  
Old 07-21-2017, 01:50 PM #17 (permalink)
Clearwater AL's Avatar
Very Helpful Member
 
Join Date: 2013
City: Central NC
State: NC
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 1,303
Clearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to behold
Clearwater AL Clearwater AL is offline
Very Helpful Member
Clearwater AL's Avatar
Join Date: 2013
City: Central NC
State: NC
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 1,303
Clearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to behold
Default Re: Insights welcome- starting the journey to diagnosis

Bingo! That is proof you are dealing with serious anxiety or some other issue that is being amplified by anxiety... not ALS.

("I had s great day yesterday with hardly any symptoms then woke up this morning with my same throat concerns...")

Symptoms directly linked to ALS do not come and go. Period. You have persisted for two pages.

("I think I'm early in the disease...") Your neuros don't

("She did not do any exam, only the EMG and the needle test. This was only performed on my right arm and leg and right sternocleidomastoid. She said she did not see evidence of ALS,")

What more could any member add to that?

PS. The EMG is the needle test... as you referred to it. Which was it?

Last edited by Clearwater AL : 07-21-2017 at 02:15 PM
Clearwater AL is offline  
Old 07-22-2017, 08:01 AM #18 (permalink)
gooseberry's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,441
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
gooseberry gooseberry is offline
Extremely Helpful Member
gooseberry's Avatar
Join Date: 2014
City: Pit of hot
State: FL
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 3,441
gooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to beholdgooseberry is a splendid one to behold
Default Re: Insights welcome- starting the journey to diagnosis

Viral infections, electrolyte imbalances, thyroid issues, can all cause your symptoms. You said you have intermittent foot drop. Als doesnt work that way Because the nerve gets damaged. Once you lose a function, its gone. You do not regain it.

Myasthenia gravis has facial symptoms...have you gone thru the mri, heavy metals, muscle enzymes, vitamin checks? If not , then stop worrying. You just know you are cramping .
gooseberry is offline  
Thanks from
Clearwater AL (07-22-2017)
Old 07-22-2017, 01:42 PM #19 (permalink)
KimT's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,780
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is offline
Extremely Helpful Member

KimT's Avatar
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,780
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default Re: Insights welcome- starting the journey to diagnosis

Deb,

I know how hard it is to wait....no matter what you're waiting for. Everyone likes to make progress toward finding out what is wrong. I think you are doing all you can do and relaxing will help. There are so many things out there that aren't ALS. Nothing that you've posted makes me think you have ALS. Try to get some good rest, keep hydrated, and make sure your doctor answers all your questions.
KimT is offline  
Old 07-28-2017, 11:11 PM #20 (permalink)
WorriedDeb's Avatar
New Member
 
Join Date: 2017
City: Madison
State: Wi
Country: US
Interest: Other
Posts: 10
WorriedDeb is on a distinguished road
WorriedDeb WorriedDeb is offline
New Member
WorriedDeb's Avatar
Join Date: 2017
City: Madison
State: Wi
Country: US
Interest: Other
Posts: 10
WorriedDeb is on a distinguished road
Unhappy Re: Insights welcome- starting the journey to diagnosis

Neurologist doesn't think als, but Swallow study showed decreased esophageal motility. Not good. Waiting for MRI. I felt good after neuro apt , but swallow study brought me back down again.
WorriedDeb is offline  
Old 07-29-2017, 02:01 AM #21 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,959
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,959
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Insights welcome- starting the journey to diagnosis

Decreased esophageal motility with no neuro deficits is unlikely to reflect ALS.
lgelb is offline  
Thanks from
Clearwater AL (07-29-2017)
Closed Thread

Tags
als, als symptoms, back, bulbar, bulbar als, burning, cramps, diagnosis, early, emg, fasciculations, fatigue, fingers, lump, muscle, muscle fatigue, muscle pain, pain, sleep, symptom, symptoms, work


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
I've just begun the slow journey of diagnosis SnowyOwl Do I Have ALS? Is This ALS? 9 02-06-2017 10:52 PM
Please help with your insights Dickensonxx Do I Have ALS? Is This ALS? 9 07-29-2015 08:07 PM
Starting the journey... CgarVienna Newly Diagnosed 12 12-30-2014 12:19 PM
Starting to understand ALS is a wait and see diagnosis. JustTrying Do I Have ALS? Is This ALS? 16 07-11-2013 08:23 PM
Insights for Which I Am Grateful quadbliss Stories of Hope 34 09-05-2008 07:56 PM


All times are GMT -5. The time now is 02:43 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016