Old 06-16-2017, 04:01 AM #1 (permalink)
DanielN's Avatar
New Member (Say Hi)
 
Join Date: 2017
City: Bratislava
State: Slovakia
Country: SK
Interest: I am interested in learning about ALS/MND.
Posts: 1
DanielN is on a distinguished road
DanielN DanielN is offline
New Member (Say Hi)
DanielN's Avatar
Join Date: 2017
City: Bratislava
State: Slovakia
Country: SK
Interest: I am interested in learning about ALS/MND.
Posts: 1
DanielN is on a distinguished road
Default Could this be anything else than ALS?

Hi
I am 18 years old High school student. It is Like 3 months when my first symptoms has begun. I had a significant weakness all around my body after a flu. I could do everything but it was just hard to do and I was very slow.( I know that this type of weakness has nothing to do with als but I just wanted to start from beginning.) So I went to a local neuro and he performed an emg. He said that I have some trapped nerves or whatever and it can happen from long sitting. Well I told him that I am an active cyclist so I don't think so.

He then said I should go to a hospital. They did a head MRI, spine MRI tons of bloodwork and urine tests and everything came back normal. Even some metabolic blood work which takes 4 weeks to get the results. And it was normal as well.

From 1 side I was happy that everything seems fine but from other it didn't solve my problems. When I finally came home I started noticing muscle twitches all around my body. I don't know when they started but I could easily notice and see then under my skin. Then I started googling my symptoms and everywhere where I looked I just saw ALS. It scared the hell out me but I was trying to be calm because it could be something else because in fact I have just twitching and nothing else.

As I said I am an active cyclist and a long distance on a bike is nothing for me. Few days after the hospital visit I went on a bike and after like 7 or 8 miles I just couldn't go anymore further. When I got off the bike I could barely walk and I had to sit down. My muscles where tired like I was cycling all the day without a break but it was just 15 minutes maybe. The way back home was even harder because it was just hard for me to push the pedals. On the next day a terrible soreness had come.

Oh god it is so long I will try to make it shorter. So I went to another hospital another 2 MRIs (head and spine) and another blood works. Everything okay. The problems with muscles continued and I got really tires when walking long distances and then a terrible soreness comes next day. I also noticed random muscle jerks, they ar not very visible (thank god) but definitely awkward. The I started tripping when walking upstairs(Its not every time but it is noticable) and dropping items (also not every time but I have never used to drop items like this, multiple times a day)

This is not getting under control anymore and my fear from als was much bigger. Everything I wanted is to rule out als. So I decided to go to only 1 als specialist in our country. (There are just 100 people affected with this terrible disease so it makes it even harder to diagnose and it it very rare here). So he performed an emg and told me that there is something going on with my lower motor neurons (He wrote small LMN lesion into my medical record) He then said I should stay here in the hospital for treatment . He also tested my reflexes and said they are kinda brisk. It was this moment where I lost all my hope because everything what I was told is related to als. But now after few days after emg I was just working out a little bit and my left thigh seemed to have less muscles than my right. So I tried to measure my left thight and it was smaller to right. When I watch closely to them I can spot the difference. So this means atrophy right?

My question is can this be anything else than als? I lost all my hope , I am in a very bad mood right now, I stopped cycling, working out and everything, and everything what I am doing now is searching the internet for some alternatives. So is this how als progresses or can it be something else not life threatening? Thank you for your time reading or answering this

Last edited by ShiftKicker : 06-16-2017 at 10:28 AM Reason: paragraphs
DanielN is offline   Reply With QuoteReply With Quote
Reply

Tags
18 years old, als, als?, atrophy, back, diagnose, emg, fear, flu, hope, ice, life, mri, muscle, muscle twitches, problems, reading, scared, symptoms, tests, treatment, twitches, twitching, wanted, weakness


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off


All times are GMT -5. The time now is 02:02 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016