tonguetwitcher
Member
- Joined
- Feb 15, 2017
- Messages
- 19
- Reason
- Learn about ALS
- Country
- CA
- State
- Québec
- City
- Montreal
Hi !
I will try to make myself the most clear and brief as possible (you can see my other post for more information).
In brief:
October: tongue bitting and what lookd like fasciculation (still ther today)
December MRI...nothing
January, twitching everywhere, stress Neurologist appontment. Says it looks benign, order an EMG to be sure
February: Emg with a specialist in ALS. No sign ALS, but order test for Mysthenia Gravis
Early April: Emg again with same specialist. No MG, but shw now seen fasciculation on Emge. She tols could be benign or could be ALS. She want breath test, and another EMG in August
Early MAy: Emg with the first neurologist (niot ALS specialist). Exam en EMG were normal. he doesn't need to see me gain
Friday (begin of june): Appointement with a neurologist NMD specialist. Examination normal, EMG nothing she worth mentionning to me. She said fasciculation without any other signs are meaningless. She make me sit and told me :: You have nothing neurological, you could still think you got a terminal disease buti t wont do anything good. All the time time you have on the internet looking for symptoms are loss time, you will never see that time again. get over internet and enjoy your life'' She also told me that she sees more ALS case that she would like to see but that i'm not one of those.
Tht,s where my confusion kicks in. I now EMG are subjective, could the second doctor seen something that the 2 others have dont notice ?
I have pain (burning type) in right arm for almost two months. Brushing my teeths inflict pain. Nothing was show on the emg or the nerves test.
I really dont know how to handle all that.
Thanks a lot !
I will try to make myself the most clear and brief as possible (you can see my other post for more information).
In brief:
October: tongue bitting and what lookd like fasciculation (still ther today)
December MRI...nothing
January, twitching everywhere, stress Neurologist appontment. Says it looks benign, order an EMG to be sure
February: Emg with a specialist in ALS. No sign ALS, but order test for Mysthenia Gravis
Early April: Emg again with same specialist. No MG, but shw now seen fasciculation on Emge. She tols could be benign or could be ALS. She want breath test, and another EMG in August
Early MAy: Emg with the first neurologist (niot ALS specialist). Exam en EMG were normal. he doesn't need to see me gain
Friday (begin of june): Appointement with a neurologist NMD specialist. Examination normal, EMG nothing she worth mentionning to me. She said fasciculation without any other signs are meaningless. She make me sit and told me :: You have nothing neurological, you could still think you got a terminal disease buti t wont do anything good. All the time time you have on the internet looking for symptoms are loss time, you will never see that time again. get over internet and enjoy your life'' She also told me that she sees more ALS case that she would like to see but that i'm not one of those.
Tht,s where my confusion kicks in. I now EMG are subjective, could the second doctor seen something that the 2 others have dont notice ?
I have pain (burning type) in right arm for almost two months. Brushing my teeths inflict pain. Nothing was show on the emg or the nerves test.
I really dont know how to handle all that.
Thanks a lot !