Janine
Member
- Joined
- May 2, 2017
- Messages
- 25
- Reason
- Other
- Country
- Uni
- State
- Massachusetts
- City
- North Reading
Hi guys, I'm having a tough time. Not yet diagnosed with ALS. I have some habit of being somatic, but don't think this time I am. My symptoms seem to have started all within the past month and honestly I don't think I have a single area not affected. First concerning symptoms was approximately one month ago when I noticed low back/pelvic "weakness" upon getting out of bed. That symptom became progressively worse and I began to note a whole body "heaviness" while attempting to get out of bed. The heaviness was so profound that I panicked a couple times and almost had my husband take me to ER. I could still move everything though so I just tried to calm down. Finally yesterday morning I just couldn't take it anymore. Body heaviness, severe back pain and the continued feeling like I wanted to collapse at the pelvis. I have also noted increasing twitches all over the body, but most strangely and intense in the abdomen and vagina. Everyone keeps saying ALS doesn't start there, but that is where I am having the most symptoms. I also am have sore biceps and hamstrings and calf cramps. Although I don't have any trouble swallowing I am noticing an occasional change to my voice which my husband also notices. I went to the ER yesterday and spent the entire day laying on a stretcher in the hallway with severe back pain. I saw two neuro's who both were unimpressed, but I believe you would have to have severe objective signs for them to be impressed. I mean I could make the diagnosis if the person were already unable to walk. (sarcasm). Anyway I was sent home and I am suffering and freaking out. I am to schedule a two week F/U. Didn't know I would have so much pain.