help1127
Active member
- Joined
- Nov 19, 2013
- Messages
- 95
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- FL
- City
- Orlando
I have posted on here many times over the last 4 years. I started with abdomen twitching 7 years ago to body wide twitching 4 years ago. I have been seen every 3 months at 2 ALS centers by two ALS specialists and what I have so far is.
Positive Hoffman
Very brisk reflexes all over even my jaw
I have what I would describe as weakness in my legs when coming down stairs my legs shake
General fatigue. I sleep alot
Sleap apnea
Few beats of clonus. But I can self induced it to the point it won't stop unless I change position.
Pain and discomfort in my shoulders, knees, legs, and lower back.
Up to this pint my doctor say I definitely don't have ALS because I don't have any weakness or atrophy.
I had to push him for another emg that is scheduled this Friday. The last one he did he found some radiculopothy on my left leg and did not want to proceed.
I really feel as if things are progressing slowly. Any advice would be helpfully or if anyone has had the same symtoms.
I do suffer from alot of anxiety which I'm taking medication for.
Thank you all,
Positive Hoffman
Very brisk reflexes all over even my jaw
I have what I would describe as weakness in my legs when coming down stairs my legs shake
General fatigue. I sleep alot
Sleap apnea
Few beats of clonus. But I can self induced it to the point it won't stop unless I change position.
Pain and discomfort in my shoulders, knees, legs, and lower back.
Up to this pint my doctor say I definitely don't have ALS because I don't have any weakness or atrophy.
I had to push him for another emg that is scheduled this Friday. The last one he did he found some radiculopothy on my left leg and did not want to proceed.
I really feel as if things are progressing slowly. Any advice would be helpfully or if anyone has had the same symtoms.
I do suffer from alot of anxiety which I'm taking medication for.
Thank you all,