gigi1
New member
- Joined
- Feb 19, 2017
- Messages
- 3
- Reason
- CALS
- Country
- US
- State
- ca
- City
- Manhattan Beach
HI,
I'm new to the forum. What is the progression for Bulbar ALS? It seems that progression can vary greatly - slow for some and fast for others. But, if it starts with the loss of speech, would it progress downwards (arms to legs)? Or, can a person with Bulbar onset start with loss of speech and then loss of legs before arms?
My husband does not have an official ALS diagnosis. He started out with hoarseness a year ago, then his speech started to slur about 6 months ago. He was seen at a certified ALS clinic in February.
Doctors Impression:
Progressive dysarthria with LMN changes of his tongue and EMG evidence of mild fasciculations in the deltoid and trapezius. The most likely dx is unfortunately progressive bulbar atrophy as seen in ALS.
He's had a plethora of testing. MRI/Lyme/Genetic, and more - ALL of which are negative.
Thank you for taking the time to read my post and respond.
I'm new to the forum. What is the progression for Bulbar ALS? It seems that progression can vary greatly - slow for some and fast for others. But, if it starts with the loss of speech, would it progress downwards (arms to legs)? Or, can a person with Bulbar onset start with loss of speech and then loss of legs before arms?
My husband does not have an official ALS diagnosis. He started out with hoarseness a year ago, then his speech started to slur about 6 months ago. He was seen at a certified ALS clinic in February.
Doctors Impression:
Progressive dysarthria with LMN changes of his tongue and EMG evidence of mild fasciculations in the deltoid and trapezius. The most likely dx is unfortunately progressive bulbar atrophy as seen in ALS.
He's had a plethora of testing. MRI/Lyme/Genetic, and more - ALL of which are negative.
Thank you for taking the time to read my post and respond.