Old 04-13-2017, 02:32 AM #1 (permalink)
Momofthree's Avatar
New Member (Say Hi)
 
Join Date: 2017
City: Redding
State: Ca
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 4
Momofthree is on a distinguished road
Momofthree Momofthree is offline
New Member (Say Hi)
Momofthree's Avatar
Join Date: 2017
City: Redding
State: Ca
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 4
Momofthree is on a distinguished road
Default Grateful for any help-Bulbar?

Thank you for any advice. My mom was just diagnosed w Bulbar onset. I am planning to be her caregiver, and also have 3 children. I am 46. In taking her to spots i noticed that some of the symptoms she has I actually have too, and have been ignoring. What ate the chances right?

Specifically, I have noticed that speech has become more difficult. I am not slurring and I sound ok but have extra fluid in my mouth. Her speech therapist tested my tongue and found it weak on one side w fluctuations. Bad sign? I swallow fine, no other weakness but my tongue feels weird.

Also I have a numbish, tingly spot on my tongue on that side, lips and cheek. My feet tingle and sometimes hands. No other muscle weakness though.

Thank you.
Momofthree is offline  
Old 04-13-2017, 03:18 AM #2 (permalink)
Momofthree's Avatar
New Member (Say Hi)
 
Join Date: 2017
City: Redding
State: Ca
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 4
Momofthree is on a distinguished road
Momofthree Momofthree is offline
New Member (Say Hi)
Momofthree's Avatar
Join Date: 2017
City: Redding
State: Ca
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 4
Momofthree is on a distinguished road
Default Re: Grateful for any help-Bulbar?

Sorry for the above typos. Also, the back of my tongue feels really heavy on the side she said was weak, especially when I lay down. Thanks again.
Momofthree is offline  
Old 04-13-2017, 08:53 AM #3 (permalink)
starente15's Avatar
Senior Member
 
Join Date: 2014
City: Northern
State: NJ
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 803
starente15 has a spectacular aura aboutstarente15 has a spectacular aura about
starente15 starente15 is offline
Senior Member
starente15's Avatar
Join Date: 2014
City: Northern
State: NJ
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 803
starente15 has a spectacular aura aboutstarente15 has a spectacular aura about
Default Re: Grateful for any help-Bulbar?

I would suggest seeing your doctor to discuss your concerns and get a referral to a neurologist if they feel it necessary. Don't ask them if it's ALS, just let them do their thing to determine what could be going on.
starente15 is offline  
Old 04-13-2017, 11:24 AM #4 (permalink)
Momofthree's Avatar
New Member (Say Hi)
 
Join Date: 2017
City: Redding
State: Ca
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 4
Momofthree is on a distinguished road
Momofthree Momofthree is offline
New Member (Say Hi)
Momofthree's Avatar
Join Date: 2017
City: Redding
State: Ca
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 4
Momofthree is on a distinguished road
Default Re: Grateful for any help-Bulbar?

Thanks Christine. Does anyone know of any other cause for weak tongue w facilitations?
Momofthree is offline  
Old 04-13-2017, 12:58 PM #5 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,159
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,159
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Grateful for any help-Bulbar?

Given your mom is newly diagnosed, don't rule out the possibility of "sympathetic symptoms." But yes, there are a host of other causes, many relatively benign. Go through the process and you'll know what it is. Sorry to hear about your mom and we will support your caregiving however possible.

Best,
Laurie
lgelb is offline  
Old 04-13-2017, 01:50 PM #6 (permalink)
Momofthree's Avatar
New Member (Say Hi)
 
Join Date: 2017
City: Redding
State: Ca
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 4
Momofthree is on a distinguished road
Momofthree Momofthree is offline
New Member (Say Hi)
Momofthree's Avatar
Join Date: 2017
City: Redding
State: Ca
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 4
Momofthree is on a distinguished road
Default Re: Grateful for any help-Bulbar?

Thank you so much Laurie.
Momofthree is offline  
Closed Thread

Tags
advice, bulbar, bulbar onset, caregiver, children, diagnosed, muscle, muscle weakness, onset, planning, speech, swallow, symptoms, tongue, weakness


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Would be so grateful for your opinions luvmygirl Do I Have ALS? Is This ALS? 8 06-16-2015 02:21 PM
Grateful (but not happy) to be here AZmujer Current Caregivers (CALS) 16 12-04-2014 09:47 PM
Would be grateful for advice. nervousjade Do I Have ALS? Is This ALS? 7 01-13-2012 03:18 PM
grateful JeffP People With ALS - "PALS" 6 04-03-2010 06:32 PM
grateful for technology NvrGiveUp Current Caregivers (CALS) 3 07-09-2007 06:36 PM


All times are GMT -5. The time now is 08:07 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016