k24si
New member
- Joined
- Nov 12, 2016
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- NC
- City
- Raleigh
I posted back in November with some of my ongoing symptoms and issues.
What I am having now, which has brought be back here, is the twitching has became somewhat localized.
My right wrist/lower forearm area, has been twitching non stop, all day/everyday, for weeks now.
I still got "pop" twitches in my legs and other upper body parts, but this has been the only twitch this severe and this constant.
I saw my neuro last week, who quickly dismissed me after a supposed "clean clinical"
With the twitching, I have fairly severe fatigue in that arm.
I haven't failed to do anything thus far that I can notice, which I know points away from ALS, but with the localized twitching for this long, wouldn't it warrant to be further investigated?
All MRI's have been clear, along with a clean EMG thisd past August. EMG was done on left side of body, not right.
Only bloodwork abnormality found was with my paraneoplastic antibody test.
I tested positive for the VGCK antibody, which according to my neuro, is seen in BCFS patients. Which is what my current diagnosis is.
Just looking for a little clarity and any advice would be greatly appreciated.
Thank you!
What I am having now, which has brought be back here, is the twitching has became somewhat localized.
My right wrist/lower forearm area, has been twitching non stop, all day/everyday, for weeks now.
I still got "pop" twitches in my legs and other upper body parts, but this has been the only twitch this severe and this constant.
I saw my neuro last week, who quickly dismissed me after a supposed "clean clinical"
With the twitching, I have fairly severe fatigue in that arm.
I haven't failed to do anything thus far that I can notice, which I know points away from ALS, but with the localized twitching for this long, wouldn't it warrant to be further investigated?
All MRI's have been clear, along with a clean EMG thisd past August. EMG was done on left side of body, not right.
Only bloodwork abnormality found was with my paraneoplastic antibody test.
I tested positive for the VGCK antibody, which according to my neuro, is seen in BCFS patients. Which is what my current diagnosis is.
Just looking for a little clarity and any advice would be greatly appreciated.
Thank you!
