Tomdoe
New member
- Joined
- Feb 27, 2017
- Messages
- 6
- Reason
- Learn about ALS
- Country
- US
- State
- CA
- City
- Los Angeles
Hello to all of you!
I'm hoping you can give me some insight.
I'll note all the twitching and body problems started after a period of extreme stress over some other medical concerns involving an ANA positive blood test with no positive for any auto immune they tested for. The throat problem was from years ago. And I've been taking klonapin daily for anxiety for these past three months.
About 2 and a half years ago I started having a feeling of tightness in my throat. And some times I get a little left over food stuck there. No problem with liquids at all even now.
About 3 months ago I started getting this strange sensation in my right leg that turned into painful tightness in both my legs.
after about a few days that subsided and I noticed body twitches all over from head to toe. When I open my hand and stiffen it out I can feel my joints cracking from the twitches.
Over the next few weeks I started noticing that my left arm started to feel heavier and clumsier no noticeable weakness but it feels like it's not a part of my body at times and i get a burning fatigue sensation when I use it in the slightest. As if I just worked it out.
At the same time I'm noticing I'm making a ton of mistakes when typing and I just feel clumsy with my fingers. Not dropping things and grip feels strong.
My pinky and ring finger on my right side feel like the won't cooperate either and I'm getting these dull pains and discomfort in my joints. Wrist and forearms in particular.
In addition throat spasms and cramps and what I feel like are tongue faciculations but I haven't seen them though. It feels like little pops with kind with kind of tingle feeling after. Or like little electrical tingling with no pop mostly all on the left side of tongue.
I do feel like I keep rubbing my tongue against my left side of my teeth when speaking and biting it lightly. And that I can't get the words out right sometimes on the first try though my family has not noticed anything unusual about my speech. Also My teeth clack together some times when I'm speaking.
My jaw lightly chatters when I keep them close together and I feel like under my right eye I there is a heavy feeling. When I half smile my right side of my face and lips quiver and shake and I feel like there is some muscle loss under my right eye above my cheek bone but no one in my family see it and I'm going to show the neuro at my next apt.
I also noticed when I blew my nose that at one point it backed out into my sinus or something odd. Though that might be from the cyst in my sinus they found.
Brain MRI normal, emg of right arm and leg normal except for faciculations in my right leg and lower recruitment on some muscles but no waves or fibs. 2 neuro have told me not ALS and probably a pinched nerve in spine. Passed all strength tests including jaw and tongue, but I just don't know what to think anymore.
When I bend over the air coming out quivers like my muscles are shaking or something.
Could bulbar take almost three years to develop further and then take over my body this quickly?
Any advice would be great. The neuro who did my EMG is from UCI and is very experienced but all these symptoms make me feel like they missed something.
I'm hoping you can give me some insight.
I'll note all the twitching and body problems started after a period of extreme stress over some other medical concerns involving an ANA positive blood test with no positive for any auto immune they tested for. The throat problem was from years ago. And I've been taking klonapin daily for anxiety for these past three months.
About 2 and a half years ago I started having a feeling of tightness in my throat. And some times I get a little left over food stuck there. No problem with liquids at all even now.
About 3 months ago I started getting this strange sensation in my right leg that turned into painful tightness in both my legs.
after about a few days that subsided and I noticed body twitches all over from head to toe. When I open my hand and stiffen it out I can feel my joints cracking from the twitches.
Over the next few weeks I started noticing that my left arm started to feel heavier and clumsier no noticeable weakness but it feels like it's not a part of my body at times and i get a burning fatigue sensation when I use it in the slightest. As if I just worked it out.
At the same time I'm noticing I'm making a ton of mistakes when typing and I just feel clumsy with my fingers. Not dropping things and grip feels strong.
My pinky and ring finger on my right side feel like the won't cooperate either and I'm getting these dull pains and discomfort in my joints. Wrist and forearms in particular.
In addition throat spasms and cramps and what I feel like are tongue faciculations but I haven't seen them though. It feels like little pops with kind with kind of tingle feeling after. Or like little electrical tingling with no pop mostly all on the left side of tongue.
I do feel like I keep rubbing my tongue against my left side of my teeth when speaking and biting it lightly. And that I can't get the words out right sometimes on the first try though my family has not noticed anything unusual about my speech. Also My teeth clack together some times when I'm speaking.
My jaw lightly chatters when I keep them close together and I feel like under my right eye I there is a heavy feeling. When I half smile my right side of my face and lips quiver and shake and I feel like there is some muscle loss under my right eye above my cheek bone but no one in my family see it and I'm going to show the neuro at my next apt.
I also noticed when I blew my nose that at one point it backed out into my sinus or something odd. Though that might be from the cyst in my sinus they found.
Brain MRI normal, emg of right arm and leg normal except for faciculations in my right leg and lower recruitment on some muscles but no waves or fibs. 2 neuro have told me not ALS and probably a pinched nerve in spine. Passed all strength tests including jaw and tongue, but I just don't know what to think anymore.
When I bend over the air coming out quivers like my muscles are shaking or something.
Could bulbar take almost three years to develop further and then take over my body this quickly?
Any advice would be great. The neuro who did my EMG is from UCI and is very experienced but all these symptoms make me feel like they missed something.