omega
New member
- Joined
- Feb 26, 2017
- Messages
- 4
- Reason
- Learn about ALS
- Country
- uk
- State
- uk
- City
- london
Morning Everyone,
Firstly may l apologise in advance if my post is the same old worried story, when l know there are genuine real sufferers on here. l have read the stickie page but something is still eating up inside me:-(
During the last week or so l have been suffering from pain in the ankles, joints, fingers and feet are numb in the morning and night, also feel quite tired and noticed muscles twiching. l suffer from gout so l thought it would be related, l then ( stupidly) went on google typed all of the above and it came up with MND/ALS as the main symptom!! Well as you can imagine since this day all that l have done is been on the net constantly finding out about the illness how it affects etc. Couple of days later l learnt about the Bulbar onset and what the affected areas are and symptoms, since then l have been fixated on my tongue movements, my swallowing has gone from normal to now struggling to swallow, l am getting stuck on words and l believe l am slurring my speech, my mouth and tongue feel dry, in the morning my throat feels horase. Eating now in the space of a few days have gone from normal to a challenge, and l am always looking at the tongue and noticing, last week it never crossed my mind.
l went to see a local GP at a walk in centre, he basicaly said stop wasting my time ( felt worse than l did) l then made a appointment with my own GP of 25 years, expalined what has been happening. He tested my knees, and ankle reflexes felt my throat, saw tongue and arranged blood tests for Hyperthyroidism ( see him tommorow). l asked about the tongue and body twiching and he said you have worked yourself up to anxiety and prescribed Propanolol, l still insisted about the chance of this illness and he said that in 30 years of a GP he has only seen it twice and he can tell. For a couple of days after the anxiety pills were ok, but last couple of days l am back to how l was feeling, constant observation in my mouth, tongue, swallowing, sore throat and speech.
Im really sorry for this long and sorry post but it has transpired that in a matter of 8 days l have gone from someone with aches and pains into thinking and feeling l have Bulbar onset, judging by my GP l dont think he will refer me to a Neuro, can someone offer me any thoughts??
l am 37 years of age male, in the last two weeks l have lost 8 kilos without obvious , also for some strange reason again dont know if it is the fact that l am now constantly looking at every bit of my body, my arms and legs seem to feel a bit lighter? lost a bit of muscle
Firstly may l apologise in advance if my post is the same old worried story, when l know there are genuine real sufferers on here. l have read the stickie page but something is still eating up inside me:-(
During the last week or so l have been suffering from pain in the ankles, joints, fingers and feet are numb in the morning and night, also feel quite tired and noticed muscles twiching. l suffer from gout so l thought it would be related, l then ( stupidly) went on google typed all of the above and it came up with MND/ALS as the main symptom!! Well as you can imagine since this day all that l have done is been on the net constantly finding out about the illness how it affects etc. Couple of days later l learnt about the Bulbar onset and what the affected areas are and symptoms, since then l have been fixated on my tongue movements, my swallowing has gone from normal to now struggling to swallow, l am getting stuck on words and l believe l am slurring my speech, my mouth and tongue feel dry, in the morning my throat feels horase. Eating now in the space of a few days have gone from normal to a challenge, and l am always looking at the tongue and noticing, last week it never crossed my mind.
l went to see a local GP at a walk in centre, he basicaly said stop wasting my time ( felt worse than l did) l then made a appointment with my own GP of 25 years, expalined what has been happening. He tested my knees, and ankle reflexes felt my throat, saw tongue and arranged blood tests for Hyperthyroidism ( see him tommorow). l asked about the tongue and body twiching and he said you have worked yourself up to anxiety and prescribed Propanolol, l still insisted about the chance of this illness and he said that in 30 years of a GP he has only seen it twice and he can tell. For a couple of days after the anxiety pills were ok, but last couple of days l am back to how l was feeling, constant observation in my mouth, tongue, swallowing, sore throat and speech.
Im really sorry for this long and sorry post but it has transpired that in a matter of 8 days l have gone from someone with aches and pains into thinking and feeling l have Bulbar onset, judging by my GP l dont think he will refer me to a Neuro, can someone offer me any thoughts??
l am 37 years of age male, in the last two weeks l have lost 8 kilos without obvious , also for some strange reason again dont know if it is the fact that l am now constantly looking at every bit of my body, my arms and legs seem to feel a bit lighter? lost a bit of muscle
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