psunit87
New member
- Joined
- Feb 22, 2017
- Messages
- 3
- Reason
- Learn about ALS
- Country
- US
- State
- Pennsylvania
- City
- Pittsburgh
Looking for some input on what I could possibly be facing…
I am a 30-year-old husband and father of one. My story starts roughly 10 months ago. It began with some weird sensations in my right arm that I would call pins and needles for lack of a better explanation. I also noticed some weakness in my grip and the strength of my wrist appeared to be decreasing. I went to my PCP and he performed a series of strength tests. He noted that the grip on my right hand was noticeably weaker than the grip on my left. I also had been having pressure headaches in the back of my head on the right side. All of this information led him to order a CT scan of my brain and a cervical spine x-ray (both clean). I continued to have the sensations in my arm so I scheduled a follow up.
Between the time of my first appointment and the follow up, I began to have more concerning symptoms. I started to notice weakness in my legs, increased brain fog, burning pain in my biceps (resulting from even the simplest of exercises), and a general feeling of unsteadiness when standing still. Of course, I told my PCP about these symptoms and he was concerned enough to send me to a Neurologist.
We are now into December of 2016 for the first Neuro appointment. At my first appointment she did a full neurological exam (didn’t really give me much input on her findings) and ordered some blood work. I received the bloodwork results a week later, and they noted that I am Vitamin D (15ng/l) and Vitamin B12 (320 pg/ml) deficient. I immediately started 2000IUs of Vitamin D daily and one b12 shot a week. At the next appointment, she performed an EMG and nerve conduction test on all four of my extremities. Her response on this was, “everything looks really good except for some small evidence of carpal tunnel”. She also ordered a cervical spine MRI that came back as “really good with some small evidence of arthritis in the neck”. Her final “diagnosis” is to keep up with the vitamin prescriptions and to manage my stress at all costs (she is well aware that I have anxiety over my health and that I am a bit of hypochondriac).
That was roughly a month ago. I now started to have muscles spasms or vibration feelings in many weird places: right eyelid, right butt cheek, left leg, and occasionally in biceps. I still feel “weak” and lethargic, but I would not call it "clinical" weakness . I also feel slightly unsteady when walking. The spasms and vibrations have me the most concerned. Could this be something as simple as vitamin deficiency mixed with stress or BFS, or is it signs of something worse? I am preparing to make another appointment to discuss these issues, but I am just looking for some input from non-clinical people out there. Thanks!
I am a 30-year-old husband and father of one. My story starts roughly 10 months ago. It began with some weird sensations in my right arm that I would call pins and needles for lack of a better explanation. I also noticed some weakness in my grip and the strength of my wrist appeared to be decreasing. I went to my PCP and he performed a series of strength tests. He noted that the grip on my right hand was noticeably weaker than the grip on my left. I also had been having pressure headaches in the back of my head on the right side. All of this information led him to order a CT scan of my brain and a cervical spine x-ray (both clean). I continued to have the sensations in my arm so I scheduled a follow up.
Between the time of my first appointment and the follow up, I began to have more concerning symptoms. I started to notice weakness in my legs, increased brain fog, burning pain in my biceps (resulting from even the simplest of exercises), and a general feeling of unsteadiness when standing still. Of course, I told my PCP about these symptoms and he was concerned enough to send me to a Neurologist.
We are now into December of 2016 for the first Neuro appointment. At my first appointment she did a full neurological exam (didn’t really give me much input on her findings) and ordered some blood work. I received the bloodwork results a week later, and they noted that I am Vitamin D (15ng/l) and Vitamin B12 (320 pg/ml) deficient. I immediately started 2000IUs of Vitamin D daily and one b12 shot a week. At the next appointment, she performed an EMG and nerve conduction test on all four of my extremities. Her response on this was, “everything looks really good except for some small evidence of carpal tunnel”. She also ordered a cervical spine MRI that came back as “really good with some small evidence of arthritis in the neck”. Her final “diagnosis” is to keep up with the vitamin prescriptions and to manage my stress at all costs (she is well aware that I have anxiety over my health and that I am a bit of hypochondriac).
That was roughly a month ago. I now started to have muscles spasms or vibration feelings in many weird places: right eyelid, right butt cheek, left leg, and occasionally in biceps. I still feel “weak” and lethargic, but I would not call it "clinical" weakness . I also feel slightly unsteady when walking. The spasms and vibrations have me the most concerned. Could this be something as simple as vitamin deficiency mixed with stress or BFS, or is it signs of something worse? I am preparing to make another appointment to discuss these issues, but I am just looking for some input from non-clinical people out there. Thanks!
