Emple
New member
- Joined
- Feb 11, 2017
- Messages
- 6
- Reason
- Learn about ALS
- Country
- UK
- State
- Aberdeen
- City
- Aberdeen
Hi
I am wondering if you can tell me your thoughts please.
I am 35 year old female. I have various symptoms going on.
I have burning in my left shin and on walking have foot pain. I can stand on toes and walk on hers but hurts afterwards.
I also notice, particularly after eating that articulating some words don't sound my usual. My lips seem looser to look at and flatter at the outer corners. Inside my mouth it looks like my tonsils have moved further down than usual. I'm not sure if my tongue has lost bulk or if my soft palate is sagging or both.
I have seen a neurologist in November and end of December. He said that my clinical exams are normal. He did say my knees reflexes were brisk. It this was because I was extremely anxious. But how does he know this for sure?
He had looked at my tongue,tested my strength of it, watched it at rest and asked me to stick it out. Blow out cheeks, whistle, turn my head, push shoulders up, babinski test was normal, jaw reflex he said was normal. He has been practicing for 30plus years.
For my reassurance He referred me for a brain MRI and an Ncv and emg all of which came back 'entirely normal' his words. This was 5 weeks ago. The consultant doing the emg is also specialist in this too and he told me on the day there were no neuromuscular diseases. He tested both legs, my right hand and right bicep. No bulbar areas were tested with the emg.
It is likely I am early stages and this is why clinically it cannot be seen by the neurologist? Also could the emg have been too even though I have pain in the leg? I don't really have any fasticulations anywhere yet except my upper left eyelid which on closure is constant.
I am trying to leave a while before gojng for a second opinion but each day terrifies me. Looking in the mirror at my deflated bottom lip and my face also just looks like it has lost muscle. Although is have lost 2 stones in weight recently from stress.
Thanks and I appreciate any thoughts.
I am wondering if you can tell me your thoughts please.
I am 35 year old female. I have various symptoms going on.
I have burning in my left shin and on walking have foot pain. I can stand on toes and walk on hers but hurts afterwards.
I also notice, particularly after eating that articulating some words don't sound my usual. My lips seem looser to look at and flatter at the outer corners. Inside my mouth it looks like my tonsils have moved further down than usual. I'm not sure if my tongue has lost bulk or if my soft palate is sagging or both.
I have seen a neurologist in November and end of December. He said that my clinical exams are normal. He did say my knees reflexes were brisk. It this was because I was extremely anxious. But how does he know this for sure?
He had looked at my tongue,tested my strength of it, watched it at rest and asked me to stick it out. Blow out cheeks, whistle, turn my head, push shoulders up, babinski test was normal, jaw reflex he said was normal. He has been practicing for 30plus years.
For my reassurance He referred me for a brain MRI and an Ncv and emg all of which came back 'entirely normal' his words. This was 5 weeks ago. The consultant doing the emg is also specialist in this too and he told me on the day there were no neuromuscular diseases. He tested both legs, my right hand and right bicep. No bulbar areas were tested with the emg.
It is likely I am early stages and this is why clinically it cannot be seen by the neurologist? Also could the emg have been too even though I have pain in the leg? I don't really have any fasticulations anywhere yet except my upper left eyelid which on closure is constant.
I am trying to leave a while before gojng for a second opinion but each day terrifies me. Looking in the mirror at my deflated bottom lip and my face also just looks like it has lost muscle. Although is have lost 2 stones in weight recently from stress.
Thanks and I appreciate any thoughts.