Sidney
Active member
- Joined
- Jan 9, 2016
- Messages
- 98
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- LO
- City
- London
Hi
I have been a regular poster on here but would like a little more advice and patience please.
My last EMG showed denervation in feet and shin but nowhere else. I have had fasis for a year and as we speak I am sitting in a sleepcentre awaiting a study as I hypoventilate at night and have had a year of interrupted sleep.
Very good neuro has diagnosed for now distal moto sensory autonomic polyneuropathy.
However neuro wants new EMG in3 months and to see me again in four.
He has admitted that for the next year and I'm a year in that als is on the table.
Could I ask the example experts on here if they feel als is on the cards.Not going to lie but when I heard the word denervation I freaked.
As we speak though no clinical weakness.
Many thanks in advance.Please do believe me that this is much more than anxiety.
Cheers
Sid
I have been a regular poster on here but would like a little more advice and patience please.
My last EMG showed denervation in feet and shin but nowhere else. I have had fasis for a year and as we speak I am sitting in a sleepcentre awaiting a study as I hypoventilate at night and have had a year of interrupted sleep.
Very good neuro has diagnosed for now distal moto sensory autonomic polyneuropathy.
However neuro wants new EMG in3 months and to see me again in four.
He has admitted that for the next year and I'm a year in that als is on the table.
Could I ask the example experts on here if they feel als is on the cards.Not going to lie but when I heard the word denervation I freaked.
As we speak though no clinical weakness.
Many thanks in advance.Please do believe me that this is much more than anxiety.
Cheers
Sid