help1127
Active member
- Joined
- Nov 19, 2013
- Messages
- 95
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- FL
- City
- Orlando
Hello everyone,
My username says help1127 and I have been trolling this site plus asking questions for 3 years or more. through all of this I have many symptoms on top of that I have seen 4 neurologists and 3 ALS neuromuscular specialist at USF and UF Shands. I also know I have been suffering through a whole lot of Anxiety so Im going to give a list in order of my condition make it easier to read. Also please do not disregard my symtoms to justanxiexty or strees unless you have proof to back that up..:-o
year 2000
1.Muscle twitches started in abdomen and were isolated there for 3 years. It only really affected me at night. even more if I had a few drinks
year 2013
2. I sold my house moved into a new house and the twitching returned with a vengeance. It was now all through out the day.
Year 2013
3. Then I started my new job and at this point I was worried and concerned over the non stop twitching in my abdomen. i call my GP he had me come in and had me try some acid reflux medicine. Help with the acid but the twitching was still there
2013
4. Got into the car and the twitching was everywhere. Well at that pretty much flared up the anxiety. Any way my GP said unless I cant move a limp i dont have ALS.. yea ok..
thru 2013 t0 2017 and I will list this in order
1. I seen a local neuromuscular specialist who did the first emg No ALS you are fine
2. my second visit with him a few months later repeat emg no als you are and don't return unless you have foot drop or something (guy is an idiot for saying that)
2. 5 months later had another Neurologist perform another emg that now showed soom what he called redicolopothy in my right thigh. Everything else was clean.
3. 2014 had a visit at USF who noted brisk reflexes and hoffman but my emg was clean
4. Returned to USF end of 2014 for a clinical and everything was the same.
2015
5. Had an appointment with my local neuro hed noted brisk reflexes 3+ and EMG of one side came back clean
end of 2015
6. USF performed anothe EMG of my right side and everything was clean
beginning of 2016
7 Seen Dr Pulley at UF Shands he did his clinical found brisk reflexes, hoffman, and on my emg he stated 2 areas in my calf showed radiculopothy
end of 2016
8. DR Pulley did only a clinical as he did not feel that a EMG is necessary. Same nothing has changed
Beginning 2017
9. Return visit to Dr Puley as I am now experiencing tightness in the muscles in my legs, torso arms, and neck to the point I cant get comfortable or sleep. He did the clinical exam, pushing and pulling said I was stronger than before on all my extremities plus the muscles in the bulbar region tongue, air in cheeks, facial muscles.
He said he is absolutely shore this is not ALS do to the fact that my strength was impressive, Plus that after more than 3 years of the same thing going on that something by now would show up. He did note that I have naturally hypereflexes and the hoffman almost everyone has including himself plus he also has the hyperreflexes plus that my stiffness was not spasticity he said it was tension from my anxiety. No emg needed
Well so that sums up my journey up to now. Im on some new anxiety medications that i just started today and Im not feeling the tightness right now keep my fingers
crossed. If anything Im worried about the tightness not being spasticity
I would have liked to get another emg just to see if there has been any difference but he said that do to my exam it did not require an emg. No weakness or atrophy.
I hope that my tightness and its everywhere is caused by the craziest anxiety to man. But im kind of worried with the hyperreflexes and the tightness only being anxiety with hyperreflexes and positive hoffman plus a few beats of clonus. He said the clonus was normal with paitients that have anxiety. A real big pill to swallow dont you agree. I was thinking PLS before I got there and not to mention the extreme fatigue and shortness of breath.
If anyone has similar stories or can relate to what is going on or has another point of view please share your suggestion. OHH and when i say stiffness Im not saying the little stiffness that get in your neck. Im talking big time stiffness that will keep me contracted, makes it difficult to sit, cause pain makes me walk in smaller steps. Makes me feel like i need to vomit and lay on my side in order to go to sleep.
Hope this can shed some light on a possible hypochondriac and extreme worrier. Please keep an open mind and lastly you can throw in the anxiety card. I just never heard of anxiety causing all of these symptoms
My username says help1127 and I have been trolling this site plus asking questions for 3 years or more. through all of this I have many symptoms on top of that I have seen 4 neurologists and 3 ALS neuromuscular specialist at USF and UF Shands. I also know I have been suffering through a whole lot of Anxiety so Im going to give a list in order of my condition make it easier to read. Also please do not disregard my symtoms to justanxiexty or strees unless you have proof to back that up..:-o
year 2000
1.Muscle twitches started in abdomen and were isolated there for 3 years. It only really affected me at night. even more if I had a few drinks
year 2013
2. I sold my house moved into a new house and the twitching returned with a vengeance. It was now all through out the day.
Year 2013
3. Then I started my new job and at this point I was worried and concerned over the non stop twitching in my abdomen. i call my GP he had me come in and had me try some acid reflux medicine. Help with the acid but the twitching was still there
2013
4. Got into the car and the twitching was everywhere. Well at that pretty much flared up the anxiety. Any way my GP said unless I cant move a limp i dont have ALS.. yea ok..
thru 2013 t0 2017 and I will list this in order
1. I seen a local neuromuscular specialist who did the first emg No ALS you are fine
2. my second visit with him a few months later repeat emg no als you are and don't return unless you have foot drop or something (guy is an idiot for saying that)
2. 5 months later had another Neurologist perform another emg that now showed soom what he called redicolopothy in my right thigh. Everything else was clean.
3. 2014 had a visit at USF who noted brisk reflexes and hoffman but my emg was clean
4. Returned to USF end of 2014 for a clinical and everything was the same.
2015
5. Had an appointment with my local neuro hed noted brisk reflexes 3+ and EMG of one side came back clean
end of 2015
6. USF performed anothe EMG of my right side and everything was clean
beginning of 2016
7 Seen Dr Pulley at UF Shands he did his clinical found brisk reflexes, hoffman, and on my emg he stated 2 areas in my calf showed radiculopothy
end of 2016
8. DR Pulley did only a clinical as he did not feel that a EMG is necessary. Same nothing has changed
Beginning 2017
9. Return visit to Dr Puley as I am now experiencing tightness in the muscles in my legs, torso arms, and neck to the point I cant get comfortable or sleep. He did the clinical exam, pushing and pulling said I was stronger than before on all my extremities plus the muscles in the bulbar region tongue, air in cheeks, facial muscles.
He said he is absolutely shore this is not ALS do to the fact that my strength was impressive, Plus that after more than 3 years of the same thing going on that something by now would show up. He did note that I have naturally hypereflexes and the hoffman almost everyone has including himself plus he also has the hyperreflexes plus that my stiffness was not spasticity he said it was tension from my anxiety. No emg needed
Well so that sums up my journey up to now. Im on some new anxiety medications that i just started today and Im not feeling the tightness right now keep my fingers
crossed. If anything Im worried about the tightness not being spasticity
I would have liked to get another emg just to see if there has been any difference but he said that do to my exam it did not require an emg. No weakness or atrophy.
I hope that my tightness and its everywhere is caused by the craziest anxiety to man. But im kind of worried with the hyperreflexes and the tightness only being anxiety with hyperreflexes and positive hoffman plus a few beats of clonus. He said the clonus was normal with paitients that have anxiety. A real big pill to swallow dont you agree. I was thinking PLS before I got there and not to mention the extreme fatigue and shortness of breath.
If anyone has similar stories or can relate to what is going on or has another point of view please share your suggestion. OHH and when i say stiffness Im not saying the little stiffness that get in your neck. Im talking big time stiffness that will keep me contracted, makes it difficult to sit, cause pain makes me walk in smaller steps. Makes me feel like i need to vomit and lay on my side in order to go to sleep.
Hope this can shed some light on a possible hypochondriac and extreme worrier. Please keep an open mind and lastly you can throw in the anxiety card. I just never heard of anxiety causing all of these symptoms