DPJ1375
New member
- Joined
- Jun 23, 2015
- Messages
- 8
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
- State
- NS
- City
- Sydney
Hi
I am now experiencing a variation in existing symptoms and new symptoms.
The initial twitching from May 2015 has pretty much disappeared, unless I have really exerted myself during the day. Any muscle I use fatigues much more quickly.
I am a seasoned singer and my speaking voice (despite proper rest, reflux medication and dietary improvements) is constantly hoarse. I have increased mucus and saliva production (especially after eating) and find myself constantly clearing my throat and increasingly aspirating small amounts of thin liquids. Cheeks feel heavy and voice tires more easily. No slurring of words or issues with solids.
I am concerned that this could be bulbar onset, similar to what Vince/Blueandgold experienced on his diagnostic journey (btw I am not expecting Vince to respond as I know he has been quite unwell, and I appreciate most of you are dealing with or caring for those with MND).
All I want to know is can bulbar start this way? Most say slurring/nasal tone and swallowing difficulties are usually first and (sometimes) hoarseness later, although I did see a post on here where someone's father was hoarse for a year before any other issues. I know statistically for my age and sex I have a 1 in 3 million chance of bulbar onset.
I expect I should have an ENT investigate and, if there reason to suspect a neurological issue, perhaps back for a neuro visit (not sure if an EMG of bulbar area will show any issues as I believe this is a notoriously difficult area in which to detect abnormalities - there are a number of posts where bulbar onset PALS had clean EMGs but manifest clinical evidence of bulbar issues).
Thanks for reading
I am now experiencing a variation in existing symptoms and new symptoms.
The initial twitching from May 2015 has pretty much disappeared, unless I have really exerted myself during the day. Any muscle I use fatigues much more quickly.
I am a seasoned singer and my speaking voice (despite proper rest, reflux medication and dietary improvements) is constantly hoarse. I have increased mucus and saliva production (especially after eating) and find myself constantly clearing my throat and increasingly aspirating small amounts of thin liquids. Cheeks feel heavy and voice tires more easily. No slurring of words or issues with solids.
I am concerned that this could be bulbar onset, similar to what Vince/Blueandgold experienced on his diagnostic journey (btw I am not expecting Vince to respond as I know he has been quite unwell, and I appreciate most of you are dealing with or caring for those with MND).
All I want to know is can bulbar start this way? Most say slurring/nasal tone and swallowing difficulties are usually first and (sometimes) hoarseness later, although I did see a post on here where someone's father was hoarse for a year before any other issues. I know statistically for my age and sex I have a 1 in 3 million chance of bulbar onset.
I expect I should have an ENT investigate and, if there reason to suspect a neurological issue, perhaps back for a neuro visit (not sure if an EMG of bulbar area will show any issues as I believe this is a notoriously difficult area in which to detect abnormalities - there are a number of posts where bulbar onset PALS had clean EMGs but manifest clinical evidence of bulbar issues).
Thanks for reading