Downy
Member
- Joined
- Aug 29, 2016
- Messages
- 23
- Reason
- Learn about ALS
- Country
- AUS
- State
- Victoria
- City
- Melbourne
I have been finally told that I most likely have ALS.
Been to see my third neurologist after expeiring difficulty swollowing and twitching all over my body. I haven't been able to work due to extreme fatigue. My neck muscles appear to be deteriorating rapidly which is also affecting my breathing. I'm disappointed as I posted on here a few months ago and was told the standard read the sticky etc etc. I am frightened for what my future holds. I have suspected I had this disease when all tests including mri and two initial emgs and blood tests were normal. I have a 7 year old daughter who is my world and don't feel I have the strength to fight this disease.
Been to see my third neurologist after expeiring difficulty swollowing and twitching all over my body. I haven't been able to work due to extreme fatigue. My neck muscles appear to be deteriorating rapidly which is also affecting my breathing. I'm disappointed as I posted on here a few months ago and was told the standard read the sticky etc etc. I am frightened for what my future holds. I have suspected I had this disease when all tests including mri and two initial emgs and blood tests were normal. I have a 7 year old daughter who is my world and don't feel I have the strength to fight this disease.