IASAD
Active member
- Joined
- Nov 25, 2016
- Messages
- 31
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
- City
- Philadelphia
Hi, I have been reading up on ALS quite a bit since discovering that my husband's symptoms seem to match the disease. I wonder if any of you can shed some light on this because I'm very scared.
My husband is 45. Sometime this year he started becoming fatigued very easily and he had been complaining that he wasn't making any progress at the gym. He has always been very fit and all of a sudden he could only run half the distance he could before, he could only do half as many push ups, etc. We thought it was just him getting older.
Then he started getting muscle twitches. They're constant now, all over his body. I can't snuggle with him at night anymore because I can't get to sleep with all the twitching. He gets cramps as well, sometimes his hands will really cramp up for no reason and get stiff. He has become weak, especially in his upper body. If he holds his arms up for even 15 seconds, his arms and whole upper body start trembling and he can't keep them up. He also has hand tremors a lot of the time.
He has lost a lot of weight. He says he just isn't eating as much as usual but it seems to be coming off quickly without much change in diet. The latest symptom that started last week which concerns me the most is that now he can't take a breath from his chest. He can only breathe using his stomach. It's uncomfortable for him especially in bed at night. His chest just won't move. He said it's a little better when he's elevated.
Also, one shoulder is a little different from the other now. There's like an indentation there that wasn't there before.
He has been to the primary doctor and they ordered blood work which isn't back yet. I know it will be a while before he can get a neurologist appointment. I've told him my concerns but I think he doesn't want to think about ALS and I don't blame him.
If there's anything you can see in this thatisnt ALS related, please let me know...I need something to ease my mind because my anxiety is through the roof right now.
Thanks for reading.
My husband is 45. Sometime this year he started becoming fatigued very easily and he had been complaining that he wasn't making any progress at the gym. He has always been very fit and all of a sudden he could only run half the distance he could before, he could only do half as many push ups, etc. We thought it was just him getting older.
Then he started getting muscle twitches. They're constant now, all over his body. I can't snuggle with him at night anymore because I can't get to sleep with all the twitching. He gets cramps as well, sometimes his hands will really cramp up for no reason and get stiff. He has become weak, especially in his upper body. If he holds his arms up for even 15 seconds, his arms and whole upper body start trembling and he can't keep them up. He also has hand tremors a lot of the time.
He has lost a lot of weight. He says he just isn't eating as much as usual but it seems to be coming off quickly without much change in diet. The latest symptom that started last week which concerns me the most is that now he can't take a breath from his chest. He can only breathe using his stomach. It's uncomfortable for him especially in bed at night. His chest just won't move. He said it's a little better when he's elevated.
Also, one shoulder is a little different from the other now. There's like an indentation there that wasn't there before.
He has been to the primary doctor and they ordered blood work which isn't back yet. I know it will be a while before he can get a neurologist appointment. I've told him my concerns but I think he doesn't want to think about ALS and I don't blame him.
If there's anything you can see in this thatisnt ALS related, please let me know...I need something to ease my mind because my anxiety is through the roof right now.
Thanks for reading.