Crystall
Here is my entire expereience with Dr. McCluskey:
1.) Saw him for the first time on May 15th. He did a complete neurological exam. He told me everything was completely normal. He diagnosed me with BFS and sent me on my way. I asked for the written report which I got 2 weeks later. The written report was not a completely normal report. It said I had exaggerated reflexes but WITHOUT increased tone. I get if there is no increased tone then its OK because later he referred to my reflexes are normal. I called and requested and EMG, they agreed to do one.
2.) June 9th I had my EMG. He did my left side of my body. He was pretty thorough, took about an hour. He told me it was pretty much normal but it showed "possible mild myopathy". I was then scheduled for a biopsy. He said 100% no ALS and there was nothing wrong with the nerves on the test.(I think this means no FIBS, PSW's, fasics). Again, I asked for the written report. I had some units that showed short to normal amplitude and length. Which I read about, in ALS the amplitude is high and long in length. This is why he pointed towards possible myopathy. Also had increased insertational activity which doesnt mean anything unless you have fibs,psw's, or fasics.
3.) July 15 or so I had the biopsy. This showed, mild atrophic fibers. No signs of denervation or innvervation. no group atrophy. those two factors are usually seen in ALS. I have this written report. Its non-specific to etiology. McClsukey called me and said nothing is really going on here, nothing points to ALS FOR SURE. That was pretty much it.
4.) I called him back and wanted a more complete conversation. I saw him on August 28th. He basically reassured me Im OK. He told me to stop looking at my body so much. He is a nice guy. After this, he pretty much told me he has done everything he could. (he has done every test). He will get me a 2nd opinion if I want it. Im dismissed from his services basically.
This is where I am now...