Sidney
Active member
- Joined
- Jan 9, 2016
- Messages
- 98
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- LO
- City
- London
Hi. I have been on here before and have been experiencing symptoms for one year now.24 hour calf fasiculations,and ankle and foot weakness primarily.
I went from a BFS diagnosis by the best Uk neurologists to 'sensory-motor-autonomic polyneuropathy'.
This was after a recent EMG showing acute denervation in my feet.
In the meantime I have breathing problems and chest muscle wastage which are being investigated.
My problem and question is can they have it wrong? I have so many crossover symptoms with ALS/MND and I have heard so many times about people being mis diagnosed.
My other question and please bear with me is can permanent chest tightness be indicative of early breathing problems?Mine feels like someone is sitting on it all day.
I already waken at night frequently breathing very fast.
I am aware of the anxiety issue and can't deny it.Who wouldn't be anxious with the threat of this horrible disease hanging over them?
Which is also why hopefully I am posing my questions respectfully to people who either have this disease or have seen and supported someone with it.
However I am a usually sensible 57 year old Grandfather and can put things into perspective.
I post because I value the counsel .Hopefully you won't dismiss me as just someone with anxiety.I do have recognised symptoms.
Thanks in anticipation.
I went from a BFS diagnosis by the best Uk neurologists to 'sensory-motor-autonomic polyneuropathy'.
This was after a recent EMG showing acute denervation in my feet.
In the meantime I have breathing problems and chest muscle wastage which are being investigated.
My problem and question is can they have it wrong? I have so many crossover symptoms with ALS/MND and I have heard so many times about people being mis diagnosed.
My other question and please bear with me is can permanent chest tightness be indicative of early breathing problems?Mine feels like someone is sitting on it all day.
I already waken at night frequently breathing very fast.
I am aware of the anxiety issue and can't deny it.Who wouldn't be anxious with the threat of this horrible disease hanging over them?
Which is also why hopefully I am posing my questions respectfully to people who either have this disease or have seen and supported someone with it.
However I am a usually sensible 57 year old Grandfather and can put things into perspective.
I post because I value the counsel .Hopefully you won't dismiss me as just someone with anxiety.I do have recognised symptoms.
Thanks in anticipation.