Just a hypochondric person or bulbar?

[fulloffear]

Hello Everyone!

Thanks to every person reading my entry.
Im 30 and mum of 4.
First of all (i want to be honest) i am a terrible hypochondric person..had all type of cancer etc etc. In mai i read an article about als and twichting...2 days later i began to twitch everywhere- i was shocked..but i think it comes from my anxiety and reading about those horrible disease...

Since that i am in fear 24-7. lost weight, take meds for my anxiety. I saw (no joke!) 17 doctors- 2 of them ALS specialists. I had 7 emgs in limbs, 5 in tongue and 2 in jaw muscles. also had magnet transmilation , called mep. All clean. All doctors ruled out ALS. but my symptoms are so strong....pain in face (jumping around im my face) twichting in face, sometimes vibrating/shivering in face, always slime in my nose and throat. No swallowing or speech issues.

What do you think? I need opinions from People knowing this disease.

Thank you!!!!!

 

[fulloffear]

Yesterday i made lungfunction-test because ive heard it would be not 100% with bulbar. Mine was 100% and very strong.

 

[affected]

Please understand you are talking to people who are dealing with the reality of a terminal illness with no cure, or those caring for someone with this, or those (like me) who watched the person they loved most in the world die of this.

You can join any number of anxiety forums and your posts will probably be well received.

You obviously DO NOT HAVE ALS, so best to leave now as we don't have time to pander to this.

 

[fulloffear]

Please understand you are talking to people who are dealing with the reality of a terminal illness with no cure, or those caring for someone with this, or those (like me) who watched the person they loved most in the world die of this.

You can join any number of anxiety forums and your posts will probably be well received.

You obviously DO NOT HAVE ALS, so best to leave now as we don't have time to pander to this.

so my symptoms do not sound like bulbar? I am so afraid...my children asked my today "why are you criying always, mummy?

 

[affected]

Is there a particular part of "You obviously DO NOT HAVE ALS" that you did not understand? (rhetorical please don't answer)

My husband died as a result of bulbar onset ALS, and you have zero symptoms of it.
I hope that is clear enough, but why would you believe strangers on the internet if you won't believe SEVENTEEN DOCTORS?

You are pushing the limits truly, please take this elsewhere.

 

[lgelb]

You owe it to yourself and your children to find a doctor who can truly help with your anxiety, so please make that your top priority. Your children can be permanently damaged if you cry and worry about your health instead of being with them. You do not have ALS.

Best,
Laurie

 

[fulloffear]

today im crying again the whole time. my lips or my cheeks suddenly move and i have this inner vibrating in my face....can this really be no bulbar? would the doctors see bulbar in jaw muslce emg? on wensday i have a tongue emg again...

 

[fulloffear]

i also have pain on the side of my tongue and in my face...its so awfull..i dont want to die, i wanna see my babies grow

 

[affected]

STOP PLEASE

You are so disrespecting those of us who are actually dealing with a terminal illness.

Get help elsewhere, this thread has surely gone past running it's course

 

[scaredwifetx]

Are you kidding me? You know you don't have ALS and yet you are posting here? You need to seek council and a doctor who can help you with anxiety. Your children do not deserve to watch you cry all the time. Anxiety can rear uts ugly head with so many symptoms.

Do everyone a favor and log on to an anxiety forum and talk to others dealing with your issues. You are not welcome here. Maybe someday you will be thankful.

 

[Nikki J]

17 doctors, 7 ( soon to be eight) EMGs? I agree with all the above. I am closing this thread. Any new posts that are not about an EMG that shows ALS or a neuromuscular physician telling you a physical finding that indicates ALS will be deleted.

You urgently need help to deal with your anxiety before it completely ruins the lives of your children. Please spend your energy seeking that help rather than chasing a diagnosis you do not have