Scared

[Nugget]

Hello. I am new here. I have recently been examined by 3 docotors. I believe I have symptoms of bulbar onset.

My tongue is twitching, barium swallow test says slow esophagus, I have tons of mucous in the back of my throat.
I have had 2 clean emgs and being told I don't have ALS, but my mouth doesn't feel right. It feels weak and twitchy.
Any guidance would be of great appreciation.

 

[affected]

What have you been told is the most likely causes to follow through further testing on?

 

[Nugget]

I have been told that it could be a virus or possible exposure to a chemical in my house. But my tongue will not stop moving in my mouth. I have no weakness though. Just tongue jerking on and off

 

[Nugget]

Also thank you for your response.

 

[affected]

How long have you been pursuing this?
You say you have had 2 clean EMG's.

My husband died of bulbar onset ALS.

He never felt anything you are describing.

Twitching means nothing, even in the tongue.

It does sound to me like a viral cause, which is a more common cause for your issues, would be far more likely.

 

[Nugget]

Thank you for your response. I am sorry for all that your husband went through. I have been seeking treatment for about 5 weeks now. The doctors seem perplexed. We additionally found a very dangerous chemical on our home and my 4 year old has also been having twitching and numbness. I just feel like im losing control of my mouth. Weak, and exhausted. No wasting or diagnosed weakness.

 

[vw-fl]

If both you and your 4 year old are experiencing physical problems and you just found a very dangerous chemical on your home I would suggest you call your poison control center as soon as possible for their advice.

vw-fl

 

[Nugget]

Thank you. We are currently under the care of an environmental doctor and toxicologist. Obviously I have called poisen control and have tended to the care of my son.