Swilliams921
Member
- Joined
- Feb 13, 2016
- Messages
- 10
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
- City
- San Clemente
I'm sorry, I tried to update on previous thread but it was closed. I guess it's been too long. I'm still in limbo trying to figure out what's wrong with me. I tell you, the time between getting into docs and waiting to have tests done and then waiting for follow up to get results is excruciating. I'm sure I don't have to tell you all that
Just a recap from my last post - I had my first EMG in Feb after experiencing a lot of weird sensory symptoms ( all started with tingling down my whole right side, then progressed from there) I've had EVERY symptom you can imagine. The main symptom that sent me for an EMG was my right calf was very soft and I had twitching just in right leg. That EMG was normal. That Neuro basically told me I had anxiety and to go away. My next EMG with a different Neuro was in April and that is what I'm reporting her. I actually just got my results and follow up a week ago. My doctor would not release report to me until I saw him and it took two months to get in there.
Impression: There is electrical diagnostic evidence for minor isolated brief motor twitches seen as isolated fasciculation potential. The appearance appears benign and may indicate hypersensitive peripheral nerves. The abnormal positive sharp waves my indicate radicular changes of the spine. There is not enough findings to implicate a motor neuron disease process. Please clinically correlate to the examination and history to better characterize the findings.
Needle EMG of the four extremities was remarkable by evidence with minor isolated fasciculations seen in two lower extremities and right biceps, isolated. There are minor abnormal positive sharp wave discharges seen in the muscles tested as listed, with the right leg more effected.
So just to be clear, I had 1+ positive sharp waves in almost every muscle tested in my right leg, some in my left leg, 1+ psw on right bicep, and 1+ psw on L5 right paraspinal. A few Fasc here and there. The next plan of action is to get 50 blood tests done and to go back in a month to go over tests. My neuro told me that if he referred me up to the ALS clinic in my area that they would probably dismiss my file, that there is not enough for them to go on. Normal reflexes and normal strength tests. Is that the only way to get to a clinic is through my neuro?
At present my symptoms are that I've lost muscle in almost every part of my body: both legs, both arms, both hands, chest, left side by ribs, dents on forehead, and probably most disturbing to me is my tongue. I can feel my tongue burning away literally. It has shrunk in size significantly. I can literally feel my muscles shrinking. My arms feel very week and heavy, but the thing is I"M NOT WEAK!!! I can literally do everything I used to. I showed all this to doc and he just said "Well, I never measured you before so I can't tell". I even showed him my tongue and he said he didn't see any fascics. At the end of my appt he says "I can't tell you if you have ALS or if you don't have ALS". UGH!!!! So frustrated. I've done such extensive research on what else this could be but can't find a thing. I mean, what else causes so much muscle loss in a matter of a few months with no weakness? I'm so sorry this is so long. I just wanted to give a detailed update.
Just a recap from my last post - I had my first EMG in Feb after experiencing a lot of weird sensory symptoms ( all started with tingling down my whole right side, then progressed from there) I've had EVERY symptom you can imagine. The main symptom that sent me for an EMG was my right calf was very soft and I had twitching just in right leg. That EMG was normal. That Neuro basically told me I had anxiety and to go away. My next EMG with a different Neuro was in April and that is what I'm reporting her. I actually just got my results and follow up a week ago. My doctor would not release report to me until I saw him and it took two months to get in there.
Impression: There is electrical diagnostic evidence for minor isolated brief motor twitches seen as isolated fasciculation potential. The appearance appears benign and may indicate hypersensitive peripheral nerves. The abnormal positive sharp waves my indicate radicular changes of the spine. There is not enough findings to implicate a motor neuron disease process. Please clinically correlate to the examination and history to better characterize the findings.
Needle EMG of the four extremities was remarkable by evidence with minor isolated fasciculations seen in two lower extremities and right biceps, isolated. There are minor abnormal positive sharp wave discharges seen in the muscles tested as listed, with the right leg more effected.
So just to be clear, I had 1+ positive sharp waves in almost every muscle tested in my right leg, some in my left leg, 1+ psw on right bicep, and 1+ psw on L5 right paraspinal. A few Fasc here and there. The next plan of action is to get 50 blood tests done and to go back in a month to go over tests. My neuro told me that if he referred me up to the ALS clinic in my area that they would probably dismiss my file, that there is not enough for them to go on. Normal reflexes and normal strength tests. Is that the only way to get to a clinic is through my neuro?
At present my symptoms are that I've lost muscle in almost every part of my body: both legs, both arms, both hands, chest, left side by ribs, dents on forehead, and probably most disturbing to me is my tongue. I can feel my tongue burning away literally. It has shrunk in size significantly. I can literally feel my muscles shrinking. My arms feel very week and heavy, but the thing is I"M NOT WEAK!!! I can literally do everything I used to. I showed all this to doc and he just said "Well, I never measured you before so I can't tell". I even showed him my tongue and he said he didn't see any fascics. At the end of my appt he says "I can't tell you if you have ALS or if you don't have ALS". UGH!!!! So frustrated. I've done such extensive research on what else this could be but can't find a thing. I mean, what else causes so much muscle loss in a matter of a few months with no weakness? I'm so sorry this is so long. I just wanted to give a detailed update.