dorsia
Member
- Joined
- May 26, 2016
- Messages
- 14
- Reason
- Learn about ALS
- Country
- swe
- State
- sweden
- City
- gothenburg
I start to say that english is not my ordinary language but i hope you understand my writing. I have post a question here before and som pictures of my hands whit possible atrophy. I have twitching all over my body and went to a neuro and was getting an EMG in arm, hand, leg and below my shoulder on the back. All came back clear! I was reliefed of course but then one day when i brushed my teeth i saw my tongue...And of course it were twitching to and i freaked out.
I don't feel the twitching but i clearly see them even when my tongue is at rest in the mouth! And of course its not a twitch here and there..its all over the place..under the surface. Just like the descriptions of fasiculations for ALS when i read on it on the net.
I asked my neuro when we spoked on the phone and she just said "yes we look for fasiculations in tongue and its a sign"...ok what should i do with info like that?! She just said i have to call back if i get any new sign as weakness and so on.
My question is..the EMG should it picked it up if it where bulbar? They never put a needle in my tongue. She said the doctor that did my EMG is the best in our country and my EMG was totally clean.
I just hate my self that a was looking in that freaking mirror that day and saw my tongue...It is constantly twitching...i don't feel it but i sure see! i have no other symtoms in mouth with speak and eating.
I don't feel the twitching but i clearly see them even when my tongue is at rest in the mouth! And of course its not a twitch here and there..its all over the place..under the surface. Just like the descriptions of fasiculations for ALS when i read on it on the net.
I asked my neuro when we spoked on the phone and she just said "yes we look for fasiculations in tongue and its a sign"...ok what should i do with info like that?! She just said i have to call back if i get any new sign as weakness and so on.
My question is..the EMG should it picked it up if it where bulbar? They never put a needle in my tongue. She said the doctor that did my EMG is the best in our country and my EMG was totally clean.
I just hate my self that a was looking in that freaking mirror that day and saw my tongue...It is constantly twitching...i don't feel it but i sure see! i have no other symtoms in mouth with speak and eating.