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Jboo

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Hi I am a 44 year old obese man. In January this year my Leg began to collapse during exercise. I Ride a mountain bike a lot and it was getting to the point that after I had been riding for a while and put my left leg down or pushed off on it, it would collapse below the back of the knee in pain which lasts for about 10 seconds. I also get constant extremely bad twitches in my left calve and thigh but also get them in my thumbs, feet and toes and right calf.
I have seen a physio and she could not find anything wrong and told me to do strength exercises. I saw a neuro specialist last week who was not very talkative but put me on the waiting list for an EMG for which there is a 12 week waiting list (ahhhh). All he would tell me is that it needs investigating. He was able to bring on fasciculations by tapping the calf muscle. Im sure i shouldn't but ive been googling it and came up with a lot of worrying information (or misinformation) .
Anyone have any thoughts on this it would be appreciated.

Thankyou in Advance.
Mike
 
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Not ALS. Not even remotely possible. Your neuro is using the EMG to look for other stuff.
 
Thank you for your quick reply. I managed to get a cancellation and had some tests done. He said I have some denervation in a muscle in my left calf. Can anyone tell me what this means?
Thanks
 
No we can't - your doctor must explain your results to you and exactly what they mean. That is what your doctor is there for.

It's too vague for us to explain in detail when we haven't seen the test results - give us the actual summary exactly as worded if you want us to comment.
 
OK. Thanks. Affer the tests he didn't say a lot. He did tell me I had carpal tunnel in my hands and significant denervation in one muscle in the calf and that he could induce fasciculations during the test, he also said that they couldn't rule out mnd .
I appreciate that this is probably not enough detail I'll try and get some more info tomorrow.
 
If your doctor doesn't explain it well enough - ask questions until you are satisfied. Remember they are being paid by you to work out your health issues, make them do their job.
 
Knowing what we know. Would you be able to tell me what questions I should ask what we need to know to understand the results,
 
Ask him - exactly what do these results rule out, and what does each thing found actually mean for me. What is the next step we should take?

These are all open questions - they invite the doctor to explain.

Closed questions would be - so do I have ALS? That only allows yes or no.

If he says something you don't understand fully, say - I don't understand that would you explain that to me?
 
Thanks again. I did ask him if I had mnd and he said we couldn't rule it out and that the next thing we have to do is have an mri, that's why I'm getting quite anxious. Trying to find out about denervation on the net and pretty much all that comes up is also. Really appreciate your replies.
 
Searching the net is never smart - it always seems to lead people here.

ALS is diagnosed after everything else has been ruled out, so that comment by the neuro in no way indicated he thinks you have ALS, just that it hasn't been ruled out.

Good luck with your tests, try to live every day in the meantime, that is what you can control.
 
Hi.
I hope i'm not becoming a pest but anxiety is getting the best of me.
I went for a MRI today only to find out that embarrasingly I am to wide to fit in the machine. Allthough we do not have the results yet my doctor spoke tp the neuro regarding my EMG who said my symptoms maybe caused by a trap nerve which the mri may of told us this.
I have tried researching denervation and in truth can't understand much of what is written but cant find anything that relates to a trapped nerve, fasciculations and denervation. My blood tests came back normal.
Thanks in advance for any insight people may have
Mike
 
Good news they are looking at a trapped nerve after your EMG.

That makes you good to go from here, wonderful for you!

Keep working with your doctors and trust them to figure out what is what.
 
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