ALS symptoms

[Brad1225]

Good afternoon. I posted back in April and have took the advice of the forum to follow up with a neurologist. I have seen two in that time frame. One with his own practice and a background with the Cleveland clinic. The other has 25 years of experience. Both have been certififed in EMG reading and the procedure. I have been experiencing fasciculations and cramps in my legs, arms, and back. I also have been experiencing what I believe is weakness in my right arm. I can still do normal things, but it seems off. I had an EMG done by the first doctor on my arms and nothing was found. They results came out normal. I had the second doctor do an EMG on my legs and he found two fasciculations, nothing else. I am still having the twitching and my hand is not worse, but it's not better, it's staying the same. I have a follow up appt with the first neurologist on June 29th. I am hoping to get more details, but my mind is set that I have ALS. Should I be concerned? Thank you for your input.

 

[affected]

Your mind is set that you have ALS.

When you first came here I told you I couldn't imagine what would make you think ALS.

Now being cleared by 2 neurologists you come back and say this. You think we will throw away everything we know and have experienced because your mind is set?

Hon, truly, go elsewhere - we are dealing with a terminal illness, no matter that our minds keep telling us this can't be true!

 

[Brad1225]

Thank you for your reply. The thing that gets me is the constant twitching of the muscles and the cramping feeling in my legs along with the achy right hand. I have been working out again after going through some exhaustion of the twitching. I have noticed a decline in the weight my dominant hand can do compared to my non-dominant. If there was a decline in the symptoms I wouldn't be as worried.

I have a follow up with the neuro and will bring this up at the appointment. Thank you again for your reply.

 

[GregK]

You were no doubt told before, but:

TWITCHING MEANS NOTHING. NORMAL PEOPLE TWITCH, SOME MORE THAN OTHERS.

you were cleared by two neurologists and two EMGs.

At this point you should seek mental health professionals. Seriously, not a jab.

But we've done what we can, good luck. Good bye.

 

[Brad1225]

I have my follow up with the neurologist next Wednesday. I will bring up my concerns at that point. I just haven't gotten better and it is a concern to me. Thank you for the input.

 

[Brad1225]

I have a question. I relieved my EMG report from the neurologist that did legs. On the report, it states that there were 2+ PSW on L.Gastron(MED), 1+ PSW L. Abd Hallucis , 1+ PSW R.Gastron(MED) and 1+ PSW L. Abd Hallucis. No other findings. I did not have a chance to discuss the report with the doctor as I received it today in the mail. I was just wondering everyone's take on it. Thank you

 

[KimT]

If you want to discuss your EMG, I would advise you to call the doctor and go over it. Only he can interpret it in its entirety.

 

[affected]

It's your doctors job to discuss the results with you.

There will have been a summary at the bottom after all the numbers, and I'm pretty sure it did not say those results were in any way indicative of ALS.