dadej
New member
- Joined
- Jun 6, 2016
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 01/2014
- Country
- IT
- State
- Rome
- City
- Rome
Hi, first of all I want to say a big thank you to all the people that post on this forum. I've spent quite a long time here lately, and reading your stories of compassion and courage was a big help to me.
I hope this is the right place to open this topic. If not, feel free to move it.
A member of my family was diagnosed with MND in early 2014. The onset was around summer 2010, when he was in his mid fifties, and noticed he couldn't move a finger anymore.
In these 6 years he lost a great deal of strength in both his arms, but he can still perform tasks like pulling up the blinds, or holding the shopping bag.
Apart from muscle wasting and weakness in the arms, and impossibility in moving certain fingers, there is no evidence of other signs of the disease: he can still speak fluently, he can eat normally and his legs work well. I can't see any emotional lability, fasciculation, spasticity or such.
Last EMG revealed damage to the lower motor neuron, but the upper one is still fine: for this reason, I think, the diagnose is still generic MND, and not ALS. On the other side, at least a doctor prescribed riluzole to him: as far as I know, riluzole is used only in ALS.
So, in the end we're a bit confused. Maybe there is no point in guessing what kind of MND we're facing, because there is no cure for any of them, and we have to accept what will come. Nevertheless the opinion of people that are more familiar than us with these kind of situations would be a great help to us.
Thanks in advance,
dade
I hope this is the right place to open this topic. If not, feel free to move it.
A member of my family was diagnosed with MND in early 2014. The onset was around summer 2010, when he was in his mid fifties, and noticed he couldn't move a finger anymore.
In these 6 years he lost a great deal of strength in both his arms, but he can still perform tasks like pulling up the blinds, or holding the shopping bag.
Apart from muscle wasting and weakness in the arms, and impossibility in moving certain fingers, there is no evidence of other signs of the disease: he can still speak fluently, he can eat normally and his legs work well. I can't see any emotional lability, fasciculation, spasticity or such.
Last EMG revealed damage to the lower motor neuron, but the upper one is still fine: for this reason, I think, the diagnose is still generic MND, and not ALS. On the other side, at least a doctor prescribed riluzole to him: as far as I know, riluzole is used only in ALS.
So, in the end we're a bit confused. Maybe there is no point in guessing what kind of MND we're facing, because there is no cure for any of them, and we have to accept what will come. Nevertheless the opinion of people that are more familiar than us with these kind of situations would be a great help to us.
Thanks in advance,
dade