Question about PLS any advice would be great.

[Tb12]

hi there

Firstly thank you to anyone who takes the time out to read my message.


hope all is well! just looking for some information and or reassurance i guess..

i have been suffering with symptoms that mimic in one way or another BFS, CFS, Kennedys disease, possible MND for 5 years now and have seen a range of neurologist and a few neuro muscular specialists..

last year kennedys was ruled out due to blood test which the neuro expected it to be, was just being on the safe side..

i also had yet another clean emg and clinical exam last year which was great despite my ongoing and ever changing, worsening symptoms over the past 5 years..

I have never had my neuro mention PLS to me..

one thing i had never heard about was primary lateral sclerosis which has now triggered my anxiety and i heard you can't find it on emg? and its slow progressing?

does anyone know if it would have shown over four to five years of symptoms? would a neuro have picked up signs? how is it diagnosed?

any information would be great

hope to hear from you

trent.