Old 06-03-2016, 10:37 AM #1 (permalink)
New Member (Say Hi)
 
Join Date: 2016
City: Ballston Lake
State: NY
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 5
Scaredmommy is on a distinguished road
Scaredmommy Scaredmommy is offline
New Member (Say Hi)
Join Date: 2016
City: Ballston Lake
State: NY
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 5
Scaredmommy is on a distinguished road
Default Bulbar Symptoms?

First, thank you for listening. I am a single mom of two girls with autism, and I am praying nothing is really wrong.

In short, bronchitis in March...still coughing. Hoarse voice that does not improve. Sometimes when I try to speak, so hoarse that nothing comes out. Frequent choking on liquids and sometimes food. Sometimes liquids seem to go up my nose. Tremendous fatigue. Feeling of lump in throat.

Checked my tongue per the info post. I can move it easily and quickly without problems. It seems strong and normal. May twitch a little, hard to tell. No slurring of speech. No twitching or anything else in my body.

Not sure what kind of doctor to see. I just keep hoping my voice will recover and my cough go away. I do have asthma. The choking thing is very disturbing.

Many thanks.
Scaredmommy is offline  
Old 06-03-2016, 10:40 AM #2 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,694
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,694
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: Bulbar Symptoms?

Does not sound at all like ALS. See your pcp who can decide if you need to see an ENT and/or a pulmo or even a GI Drop ALS from your radar completely. Hope you feel better soon
Nikki J is offline  
Old 06-03-2016, 10:46 AM #3 (permalink)
New Member (Say Hi)
 
Join Date: 2016
City: Ballston Lake
State: NY
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 5
Scaredmommy is on a distinguished road
Scaredmommy Scaredmommy is offline
New Member (Say Hi)
Join Date: 2016
City: Ballston Lake
State: NY
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 5
Scaredmommy is on a distinguished road
Default Re: Bulbar Symptoms?

Hello Nikki,

Thank you so much for your kind reply. Is you conclusion based on how well I can move my tongue? I would presume that would make ALS unlikely.

You are very kind.
Scaredmommy is offline  
Old 06-03-2016, 12:57 PM #4 (permalink)
starente15's Avatar
Senior Member
 
Join Date: 2014
City: Northern
State: NJ
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 804
starente15 has a spectacular aura aboutstarente15 has a spectacular aura about
starente15 starente15 is offline
Senior Member
starente15's Avatar
Join Date: 2014
City: Northern
State: NJ
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 804
starente15 has a spectacular aura aboutstarente15 has a spectacular aura about
Default Re: Bulbar Symptoms?

Hi scared. I also have asthma, repeated bouts of bronchitis and more recently, laryngitis where I lost my voice totally for almost 3 weeks.

I see a great pulmo for my breathing issues and he told me that my food allergies were causing 'silent' reflux, i.e., no pain, which was irritating my vocal chords and causing a lump in the throat feeling. Might be another avenue to explore.
starente15 is offline  
Old 06-03-2016, 03:21 PM #5 (permalink)
Member
 
Join Date: 2016
City: Reno
State: NV
Country: US
Diagnosed: 06/2016
Interest: I have been diagnosed with ALS.
Posts: 174
faithandlove has a spectacular aura aboutfaithandlove has a spectacular aura about
faithandlove faithandlove is offline
Member
Join Date: 2016
City: Reno
State: NV
Country: US
Diagnosed: 06/2016
Interest: I have been diagnosed with ALS.
Posts: 174
faithandlove has a spectacular aura aboutfaithandlove has a spectacular aura about
Default Re: Bulbar Symptoms?

Bronchitis takes time to get over, and choking is normal. I have gotten bronchitis many times. Years ago I got it and lost my voice for about 3 weeks and then did not have my normal voice for about a month longer. Having asthma, then bronchitis and two daughters with autism - no wonder you are so tired.

One symptom such as this does not constitute having ALS. ALS is rare, and it takes time to get a diagnosis. There are many diseases/illness that a person can have before they finally state you have ALS. Doctors/Neurologists would put you through many, many tests before they would diagnose you with ALS.

It took two years for me to get diagnosed and I had falls, drop foot, balance issues, dropping things, and now some choking problems. If the choking came first, I would have never thought I would be diagnosed with ALS. My concern came when my quality of life was affected by my lack of getting around, nearly killing myself with close calls of falling, and not being able to hold onto things. Even then, I did not think I had ALS, and, to be honest, I'm still hoping they are wrong. Wishful thinking.

Hope you get well soon.

Hugs,
Deb
faithandlove is offline  
Old 06-03-2016, 03:34 PM #6 (permalink)
KimT's Avatar
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,966
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is offline
Extremely Helpful Member

KimT's Avatar
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,966
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default Re: Bulbar Symptoms?

Silent reflux can cause ALL your symptoms. There's a book called "Dropping Acid" that deals with silent reflux with lifestyle modifications and diet. An ENT or gastro can help.
KimT is offline  
Old 06-03-2016, 03:47 PM #7 (permalink)
starente15's Avatar
Senior Member
 
Join Date: 2014
City: Northern
State: NJ
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 804
starente15 has a spectacular aura aboutstarente15 has a spectacular aura about
starente15 starente15 is offline
Senior Member
starente15's Avatar
Join Date: 2014
City: Northern
State: NJ
Country: US
Interest: I lost a loved one to ALS/MND.
Posts: 804
starente15 has a spectacular aura aboutstarente15 has a spectacular aura about
Default Re: Bulbar Symptoms?

I'm going to check that book out Kim, thanks! I have major problems with it, i.e., wheezing, sore throats. I'm currently trying a diet change and it does help, just hard to stick with.
starente15 is offline  
Old 06-04-2016, 05:05 PM #8 (permalink)
New Member (Say Hi)
 
Join Date: 2016
City: Ballston Lake
State: NY
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 5
Scaredmommy is on a distinguished road
Scaredmommy Scaredmommy is offline
New Member (Say Hi)
Join Date: 2016
City: Ballston Lake
State: NY
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 5
Scaredmommy is on a distinguished road
Default Re: Bulbar Symptoms?

Thank you all so much for your kindness and patience in answering. I went to my GP yesterday, and she thinks it's probably GERD, Asthma, allergies, or all three. She's sending me for a barium swallow test. Hopefully all will be well. Trying to drink and eat cautiously, but still choking a bit.

Plus she had me move my tongue, eye brows and smile. And said my neuro reflexes seemed normal.

Many thanks again.
Scaredmommy is offline  
Old 06-09-2016, 09:19 AM #9 (permalink)
New Member (Say Hi)
 
Join Date: 2016
City: Ballston Lake
State: NY
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 5
Scaredmommy is on a distinguished road
Scaredmommy Scaredmommy is offline
New Member (Say Hi)
Join Date: 2016
City: Ballston Lake
State: NY
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 5
Scaredmommy is on a distinguished road
Default Re: Bulbar Symptoms? Update - barium swallow

Hello All and many thanks again for your kindness. Had the barium swallow this morning and the radiologist said his preliminary opinion was it looked normal. Does that rather definitively rule out Bulbar ALS given the other information I shared. Many thanks again
Scaredmommy is offline  
Old 06-09-2016, 09:36 AM #10 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,694
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,694
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: Bulbar Symptoms?

It adds to the conclusion we had already said. No reason to fear ALS. Good luck and happy long life
Nikki J is offline  
Old 06-09-2016, 10:11 AM #11 (permalink)
New Member (Say Hi)
 
Join Date: 2016
City: Ballston Lake
State: NY
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 5
Scaredmommy is on a distinguished road
Scaredmommy Scaredmommy is offline
New Member (Say Hi)
Join Date: 2016
City: Ballston Lake
State: NY
Country: USA
Interest: I am interested in learning about ALS/MND.
Posts: 5
Scaredmommy is on a distinguished road
Default Re: Bulbar Symptoms?

Many thanks, Nikki. God Bless.
Scaredmommy is offline  
Closed Thread

Tags
bulbar, choking, coughing, fatigue, food, go away, info, lump, nose, problems, speech, symptoms, symptoms?, tongue, twitch, twitching, voice, wrong


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Advice on Symptoms - ALS/Bulbar Symptoms/Tongue deviation Gwennie123 Do I Have ALS? Is This ALS? 2 02-24-2016 10:24 AM
Bulbar Symptoms? cougar9000 Do I Have ALS? Is This ALS? 7 04-17-2015 01:54 AM
Bulbar Symptoms? vic808 Do I Have ALS? Is This ALS? 5 08-22-2014 11:35 PM
als bulbar symptoms sano Do I Have ALS? Is This ALS? 4 06-29-2013 10:36 AM
bulbar symptoms Alexandre Do I Have ALS? Is This ALS? 10 11-10-2009 10:34 PM
Bulbar symptoms? sukilou General Discussion About ALS/MND 3 10-25-2008 03:39 PM
Is this Bulbar symptoms tee5 Do I Have ALS? Is This ALS? 19 09-10-2008 07:30 PM
bulbar symptoms pldo Do I Have ALS? Is This ALS? 7 02-23-2008 08:57 PM
Bulbar ALS Symptoms - Someone please help. pmlr General Discussion About ALS/MND 5 05-16-2007 10:00 PM
Bulbar Symptoms stacykoca General Discussion About ALS/MND 1 03-10-2007 09:50 AM


All times are GMT -5. The time now is 11:15 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016