Llfa
New member
- Joined
- May 27, 2016
- Messages
- 6
- Reason
- Learn about ALS
- Country
- Us
- State
- Ny
- City
- Syracuse
Hello,
I am a 44 y.o mom and wife.
I am writing to you to see if any of you can give me some kind of reassurance on what has been going on with me for the last 2 months.
I started having leg stiffness (both legs) to the point where it has been hard to walk, my muscles get fatigued and I need to sit down.
After that both my elbows started bothering me and both byceps and shoulders started getting the same fatigued sore feeling together with hips and thighs and both my hands started having the same feeling.
Dr. Sent me to rheumatologist who ruled out RA, Lyme lupus and inflammatory diseases.
He sent me back to my dr. Who checked for vitamin deficiency (slightly low D) so taking 50,000 iu a week.
My muscles enzymes were good, but my symptoms have not disappeared. My overall strength has diminished and dr. Said he didn't like what he was seeing and mentioned ALS.
He is sending me to Strong hospital in Rochester Ny to see a neurologist because he has at Loss on what's going on.
I am naturally very very thin and he has hard time to see if my muscles are atrophied, I have none.
My muscles started twitching too, they have never done that apart from eyelids.
Dr put me on cymbalta, maybe could be the culprit ? Also I have been having hand tremors.
Before all this started( about 10 days prior) I had a weird infection on side of the mouth that gave a swollen lip and was treated with partial antibiotic (partial because once pus was drained everything went away) and doc doesn't seem concerned that the 2 situations are related!
I am honestly very worried, my question are:
1) could ALS "attack " multiple muscles at a time? Byceps shoulders hands hips and thighs ? Not calves or feet.
In 2 months time?
Thank you so much for reading And I would appreciate any of your help to ease my worries.
Italian mom
I am a 44 y.o mom and wife.
I am writing to you to see if any of you can give me some kind of reassurance on what has been going on with me for the last 2 months.
I started having leg stiffness (both legs) to the point where it has been hard to walk, my muscles get fatigued and I need to sit down.
After that both my elbows started bothering me and both byceps and shoulders started getting the same fatigued sore feeling together with hips and thighs and both my hands started having the same feeling.
Dr. Sent me to rheumatologist who ruled out RA, Lyme lupus and inflammatory diseases.
He sent me back to my dr. Who checked for vitamin deficiency (slightly low D) so taking 50,000 iu a week.
My muscles enzymes were good, but my symptoms have not disappeared. My overall strength has diminished and dr. Said he didn't like what he was seeing and mentioned ALS.
He is sending me to Strong hospital in Rochester Ny to see a neurologist because he has at Loss on what's going on.
I am naturally very very thin and he has hard time to see if my muscles are atrophied, I have none.
My muscles started twitching too, they have never done that apart from eyelids.
Dr put me on cymbalta, maybe could be the culprit ? Also I have been having hand tremors.
Before all this started( about 10 days prior) I had a weird infection on side of the mouth that gave a swollen lip and was treated with partial antibiotic (partial because once pus was drained everything went away) and doc doesn't seem concerned that the 2 situations are related!
I am honestly very worried, my question are:
1) could ALS "attack " multiple muscles at a time? Byceps shoulders hands hips and thighs ? Not calves or feet.
In 2 months time?
Thank you so much for reading And I would appreciate any of your help to ease my worries.
Italian mom