Jumping
New member
- Joined
- May 26, 2016
- Messages
- 2
- Reason
- Learn about ALS
- Country
- Uk
- State
- London
- City
- London
Dear all,
So I decided a month ago not to bother anyone who has been given the horrible ALS with my worries. Today however, I am so scared, unable to take care of my family and just dont see the point in living so I decided to seek your advise. If you find this rude or anything, please just ignore my post and dont think a am unsensitive.
So my story: I am a 29 year old male. 2 months ago the bottom of my feet started twitching. After a couple of weeks these spread to my calves. The twitching is constant and looks like worms under my skin. I did 2 EMGs. Both showing fasciculations in my calves and complex repetative discharges (whatever that is). Neither my neuro or the neuro who did the EMG thought this was related to ALS, but asked me to wait and see. Then, over the last month and a half, the fasciculations have slowly spread up my thighs. Started around the knees and now in the whole muscles. So I have now constant twitches in my feet, calves and thighs, having steadily progressed. In addition I have the occational fascics in my back, neck, shoulder and arm. Further on, my thighs feel sore and tired.
Then I came across this post
https://www.alsforums.com/forum/do-i-have-als-als/5874-cramping-up-muscle-soreness.html
MTPockets (RIP) describes a story just like mine that turned out to be ALS. Steady peogression of fascics from feet and up legs BEFORE atrophy and weakness.
What are your thoughts around this? Is his story a common one for ALS?
So I decided a month ago not to bother anyone who has been given the horrible ALS with my worries. Today however, I am so scared, unable to take care of my family and just dont see the point in living so I decided to seek your advise. If you find this rude or anything, please just ignore my post and dont think a am unsensitive.
So my story: I am a 29 year old male. 2 months ago the bottom of my feet started twitching. After a couple of weeks these spread to my calves. The twitching is constant and looks like worms under my skin. I did 2 EMGs. Both showing fasciculations in my calves and complex repetative discharges (whatever that is). Neither my neuro or the neuro who did the EMG thought this was related to ALS, but asked me to wait and see. Then, over the last month and a half, the fasciculations have slowly spread up my thighs. Started around the knees and now in the whole muscles. So I have now constant twitches in my feet, calves and thighs, having steadily progressed. In addition I have the occational fascics in my back, neck, shoulder and arm. Further on, my thighs feel sore and tired.
Then I came across this post
https://www.alsforums.com/forum/do-i-have-als-als/5874-cramping-up-muscle-soreness.html
MTPockets (RIP) describes a story just like mine that turned out to be ALS. Steady peogression of fascics from feet and up legs BEFORE atrophy and weakness.
What are your thoughts around this? Is his story a common one for ALS?