ucla2004
Member
- Joined
- May 18, 2007
- Messages
- 21
- Reason
- Learn about ALS
- Country
- US
- State
- California
- City
- Los Angeles
Hi everyone,
I have noticed that too many people in this forum are putting information out of context. I researched on all sorts of information on twitches and and its presentation. And I will let everyone know that twitches alone are NOT ALS specific. I do not know how to put my message across any stronger, but twitches alone are NOT ALS specific. Nothing upsets me more but to see people discuss their twitches, atrophy and weakness out of context. Everyone in this forums needs to be sensitive to other people who are twitching and are looking for reassurance on the web. Anyone is free to post, but if you are going to share your experiences make sure to have your information correct or else do not post. It does no good for people who twitching and looking for reassurance, for people in this forums to say, " I have been Dx with ALS and I have twitches". Twitching is extremely common and isn't a major concern in the clinic because twitches are harmless and subtle. It is only those 10% of people that twitch that are hypervigilant and check the web and freak out when they see twitches and its association with ALS.
I twitch all the time 24/7. I twitch in my eyelids, temple, occipital area, shoulders, neck, biceps, triceps, forearms, fingers, abdomen, quads, hamstrings, calfs, feet. My twitches are not constant, but random that will flare up in diffferent places each day. my Twitches are characterized at times as thumbers, vibrations, flares etc...My mother and my 11 year old brother twitch all the time. I see my younger brother twitch in the same places I twitch. I bring this up to show you that anyone can twitch and if someone who was Dx with ALS happens to twitch randomly, that does not mean these twitches are per say ALS related. It just happens that someone with ALS happens to also have benign twitches. Thus, for people who are twitching and are in search of reassurance please be aware that your twitches are more likely to be benign.
If you are in search of reassurance please look for help. What helps me is cognitive behavioral therapy because I jump to conclusions to often and think for the worst. I tend to have mind distortions to often. I think for the most part a lot of people do suffer from it and need treatment. If I have acid reflux I think I have stomach cancer. If my back starts to hurt, I think I have a CNS tumor; headache...you know it, brain cancer.
What also helps merelief my anxiety is lifting weights and running 4-5miles/day. If this something people enjoy doing I would advice people to start doing it more. Alright everyone, I hope this helps people. Take care.
I have noticed that too many people in this forum are putting information out of context. I researched on all sorts of information on twitches and and its presentation. And I will let everyone know that twitches alone are NOT ALS specific. I do not know how to put my message across any stronger, but twitches alone are NOT ALS specific. Nothing upsets me more but to see people discuss their twitches, atrophy and weakness out of context. Everyone in this forums needs to be sensitive to other people who are twitching and are looking for reassurance on the web. Anyone is free to post, but if you are going to share your experiences make sure to have your information correct or else do not post. It does no good for people who twitching and looking for reassurance, for people in this forums to say, " I have been Dx with ALS and I have twitches". Twitching is extremely common and isn't a major concern in the clinic because twitches are harmless and subtle. It is only those 10% of people that twitch that are hypervigilant and check the web and freak out when they see twitches and its association with ALS.
I twitch all the time 24/7. I twitch in my eyelids, temple, occipital area, shoulders, neck, biceps, triceps, forearms, fingers, abdomen, quads, hamstrings, calfs, feet. My twitches are not constant, but random that will flare up in diffferent places each day. my Twitches are characterized at times as thumbers, vibrations, flares etc...My mother and my 11 year old brother twitch all the time. I see my younger brother twitch in the same places I twitch. I bring this up to show you that anyone can twitch and if someone who was Dx with ALS happens to twitch randomly, that does not mean these twitches are per say ALS related. It just happens that someone with ALS happens to also have benign twitches. Thus, for people who are twitching and are in search of reassurance please be aware that your twitches are more likely to be benign.
If you are in search of reassurance please look for help. What helps me is cognitive behavioral therapy because I jump to conclusions to often and think for the worst. I tend to have mind distortions to often. I think for the most part a lot of people do suffer from it and need treatment. If I have acid reflux I think I have stomach cancer. If my back starts to hurt, I think I have a CNS tumor; headache...you know it, brain cancer.
What also helps merelief my anxiety is lifting weights and running 4-5miles/day. If this something people enjoy doing I would advice people to start doing it more. Alright everyone, I hope this helps people. Take care.