- Joined
- May 9, 2016
- Messages
- 1,529
- Reason
- Lost a loved one
- Diagnosis
- 06/2016
- Country
- US
- State
- MN
- City
- Minneapolis
My husband has drop foot in his left foot. It is not even actually "floppy", but most re that it will only raise a tiny bit. He has had an EMG that per the Dr was "three times longer" than anticipated. Now he is moving on to a 2.5 hour MRI, brain and back and limbs.
The positive things here are that he fell on some steps and hit his knee in February so I hold out hopes that it is nerve damage from that injury. I was also relieved to hear recently that he has numbness, as I know numbness is not indicative of ALS. I am concerned he has has nighttime leg cramps the past year, that his tests are so extensive, and he was moved from a "regular" neuro to one who specializes in neuromuscular conditions. I don't belong Eve they think this is from the fall anymore. He is 66, and I am doing all I can to keep it 100% positive and encouraging with him. I am 51 in July and he keeps making "young widow" jokes. Eases the tension I suppose.
Under the circumstances I know my ALS concerns are silly, but find them difficult to shake. A friend was very unexpectedly Dx'd two years ago so I am sure that has gotten my anxiety up.
I just wanted to say I have so much respect for everyone dealing with this disease.
The positive things here are that he fell on some steps and hit his knee in February so I hold out hopes that it is nerve damage from that injury. I was also relieved to hear recently that he has numbness, as I know numbness is not indicative of ALS. I am concerned he has has nighttime leg cramps the past year, that his tests are so extensive, and he was moved from a "regular" neuro to one who specializes in neuromuscular conditions. I don't belong Eve they think this is from the fall anymore. He is 66, and I am doing all I can to keep it 100% positive and encouraging with him. I am 51 in July and he keeps making "young widow" jokes. Eases the tension I suppose.
Under the circumstances I know my ALS concerns are silly, but find them difficult to shake. A friend was very unexpectedly Dx'd two years ago so I am sure that has gotten my anxiety up.
I just wanted to say I have so much respect for everyone dealing with this disease.