Aswanson
Active member
- Joined
- Mar 1, 2016
- Messages
- 33
- Reason
- CALS
- Country
- US
- State
- NH
- City
- Wakefield
Hi,
Last I wrote my husband had an appointment with his new neurologist where he had diagnosed him him with bulbar palsy (per report we received) and was questioning bulbar onset ALS.
This past week he went and had an EMG. We are so confused now because at the end she said she was thinking psedubulbar palsy and at right now does not have ALS, but still wants him to meet with an ALS specialist to make sure she's on the right track.
The EMG was "surprisingly normal" as she wrote, but yet she also states there were occasional fasciculations ( in the tongue are during test)??? How is that normal and not inconclusive at least?
She made mention of "no extremity fatigue, brisk jaw jerk, profound dysarthria, visual tongue fasciculations and atrophy, tongue weakness and failing to protrude to midline, lip weakness and mild hypophonia
No facial weakness. "
These were the key points she made. I'm quite happy if it's the case, but in her report even she talks about bulbar onset ALS and with the EMG being more consistent with pseudobulbar ... I get the impression she was very shocked at the reading?
All of this really came to head in Jan, 2016 - is it possible it wouldn't show up in multiple spots yet on the EMG or is it really pseudobulbar ?
Thank you for your thoughts. We are just so frustrated and all he wants to do is go back to work
Amy
Last I wrote my husband had an appointment with his new neurologist where he had diagnosed him him with bulbar palsy (per report we received) and was questioning bulbar onset ALS.
This past week he went and had an EMG. We are so confused now because at the end she said she was thinking psedubulbar palsy and at right now does not have ALS, but still wants him to meet with an ALS specialist to make sure she's on the right track.
The EMG was "surprisingly normal" as she wrote, but yet she also states there were occasional fasciculations ( in the tongue are during test)??? How is that normal and not inconclusive at least?
She made mention of "no extremity fatigue, brisk jaw jerk, profound dysarthria, visual tongue fasciculations and atrophy, tongue weakness and failing to protrude to midline, lip weakness and mild hypophonia
No facial weakness. "
These were the key points she made. I'm quite happy if it's the case, but in her report even she talks about bulbar onset ALS and with the EMG being more consistent with pseudobulbar ... I get the impression she was very shocked at the reading?
All of this really came to head in Jan, 2016 - is it possible it wouldn't show up in multiple spots yet on the EMG or is it really pseudobulbar ?
Thank you for your thoughts. We are just so frustrated and all he wants to do is go back to work
Amy