Hello. I'm back again. I understand that I'm supposed to stick to my original thread but it was closed.
Quick recap:symptoms started with fasiculations in Feb. of 2015. I have had increasing hand atrophy, foot problems, and shoulder weakness. (This is mostly in left hand side of body). I also have very brisk reflexes and some increased tone, whatever that means. However, this last week things have progressed. The fasiculations moved to my tongue. There is a little wasting at the sight of fasiculations. I also have a harder time talking slightly, but the fasiculations scare me. I sent the "video" to a doc at a neuromuscular clinic and she agreed to see right away again. Well, right away is over a month from now.
I know in my heart what this means And yes, these are true fasiculations at rest (and not at rest). Only on one side so far.
I have never had a tongue EMG. I had a okay limb EMG in October (and previous ones!!!). I also think they have ruled everything else out.
So, I guess I'm writing because I don't know what else to do. I contacted some local resources but it takes time. Thank you for the support.
Lea
Quick recap:symptoms started with fasiculations in Feb. of 2015. I have had increasing hand atrophy, foot problems, and shoulder weakness. (This is mostly in left hand side of body). I also have very brisk reflexes and some increased tone, whatever that means. However, this last week things have progressed. The fasiculations moved to my tongue. There is a little wasting at the sight of fasiculations. I also have a harder time talking slightly, but the fasiculations scare me. I sent the "video" to a doc at a neuromuscular clinic and she agreed to see right away again. Well, right away is over a month from now.
I know in my heart what this means And yes, these are true fasiculations at rest (and not at rest). Only on one side so far.
I have never had a tongue EMG. I had a okay limb EMG in October (and previous ones!!!). I also think they have ruled everything else out.
So, I guess I'm writing because I don't know what else to do. I contacted some local resources but it takes time. Thank you for the support.
Lea
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