Mind's fix that i have bulbar ALS

[TheUnluckyone012]

I am only 17, Male and Asian

In early November i found myself stuttering sometimes or it's hard to form a word and now it's getting worst, I Mean it's really getting bad!

I have twitching in all over my body

Shakiness in whole body i think tremors in my whole body especially in my hand

I have REAL fasciculations in my tongue just like in any other ALS patient


I have these tongue fasciculations in my tongue yes they are really fasciculations
What should I do? What kind of doctor should I go? I am really scared this is not Anxiety...

I don't want to suffer from ALS.....I want to kill myself rather than suffering from it I am really scared

I am really losing hope..

 

[Atsugi]

Hello again, Lucky.

Go see your family doctor.

 

[TheUnluckyone012]

I am scared to go to a doctor I guess I'll just wait till my bulbar ALS gets worst

 

[Atsugi]

What do your parents want to do?

 

[TheUnluckyone012]

They want me to go to a doctor but there is no good doctor here in Philippines for diagnosing ALS and plus I am really scared to go to the doctor

 

[TheUnluckyone012]

Here is the video of my tongue: https://www.youtube.com/watch?v=qtmZhl_fcA0&feature=youtu.be


I am really scared

 

[Atsugi]

Tell us what happened at your doctor.

 

[Nikki J]

Means nothing. The tongue can twitch even at rest for completely benign reasons. This has been discussed here and on the bfs forums over and over. And that was not even at rest

 

[gooseberry]

Go see a neuromuscular specialist. Coming back here will do nothing for you because we aee not doctors. People here are ill, exhausted, and sometimes low on patience. Several people have said to see your doctor. GO!

 

[TheUnluckyone012]

Tell us what happened at your doctor.

I don't want to go to the doctor but what is ur opinion?

 

[Atsugi]

Did you just have an EMG?

 

[TheUnluckyone012]

Did you just have an EMG?

No, not yet does this mean you think I have ALS?

 

[Atsugi]

No, not yet does this mean you think I have ALS?

NOT AT ALL.

Many of us--everyone who has seen your posts--have told you that there is NO WAY for you to have ALS.

You still don't.

You need to listen to your parents.

You don't really think you have ALS. If you really thought you were dying, you would see a doctor. So I'm thinking you're having fun with us. Having fun with dying people.

 

[TheUnluckyone012]

NOT AT ALL.

Many of us--everyone who has seen your posts--have told you that there is NO WAY for you to have ALS.

You still don't.

You need to listen to your parents.

You don't really think you have ALS. If you really thought you were dying, you would see a doctor. So I'm thinking you're having fun with us. Having fun with dying people.

Maybe it's time for me to wake up and go to my doctor I'll just keep you guys update for now I'll try to have fun with my life and stop thinking about this horrendous disease

 

[Atsugi]

Exactly right.