Vienneguy
Active member
- Joined
- Mar 9, 2016
- Messages
- 55
- Reason
- Learn about ALS
- Country
- FR
- State
- NY
- City
- Vienne
Hi Every body,
First of all, please apologize for my mistakes because I am french.
I am 34 years old, married with two children and live in South of France, looking for some feedbacks about my situation.
I am in a really difficult time since about 7 weeks, where I am dealing with big problems in both legs, but especially in the right one.
I have twitches all over my body but mostly in my legs from the day to the night.
I feel very painful on the arch of my feet with tingling sensations too. I feel muscular pains and weakness when I walk, but no loosing balance, no cramps, mostly a lot of disconfort and aches.
These symptoms are constant with no remission since the beginning, I have done all the usual tests (head and spinal mri, lumbar aspiration, complete blood test) and all looks fine.
Then, one month after these problems, I have done two EMG with two different neuros which came normal too. Of course, EMG didn't notice the twitches I had but I can see them on my skin, a neuro saw them and told me that it was myokymias and not fasciculations.
After that, I wasn't reassured and decided to go to an als specialised center and neuro only done a clinical exam which came normal and told me that as I have done EMG just before, he wouldn't do another emg and that I had no ALS!! But I do not trust him because I am in a constant pain when I am walking and even when I do nothing and am rested.
All neuros found hyperreflexia, no babinsky signs, no weakness, no spasticity and no amyotrophy, no pyramidal syndrome surely because it is too early. For them, pains are not related to als, it is an unusual symptom and as my emg and clinical exams are normal, it is stricly impossible to have ALS.
When I see als forum, I may have upper neuron problems (hyperreflexia, limbs problems) and lower neuro problems (twitches...) but I am not and expert.
I should be optimistic but I am really dealing with walking problems.
I am really scared actually because of these difficulties to walk, the muscular pains and my permanent spasms all over my body and when I think about it, it is really similar to als symptoms.
I would like to know if such kind of symptoms can be the beginning of als and if EMG can detect early problems like denervations, fibrillations...I saw that EMG could not detect upper neuro problems early, only lower. Am I wrong? Hope I am clear in my questions and thinkings, and thanks in advance for your answers.
First of all, please apologize for my mistakes because I am french.
I am 34 years old, married with two children and live in South of France, looking for some feedbacks about my situation.
I am in a really difficult time since about 7 weeks, where I am dealing with big problems in both legs, but especially in the right one.
I have twitches all over my body but mostly in my legs from the day to the night.
I feel very painful on the arch of my feet with tingling sensations too. I feel muscular pains and weakness when I walk, but no loosing balance, no cramps, mostly a lot of disconfort and aches.
These symptoms are constant with no remission since the beginning, I have done all the usual tests (head and spinal mri, lumbar aspiration, complete blood test) and all looks fine.
Then, one month after these problems, I have done two EMG with two different neuros which came normal too. Of course, EMG didn't notice the twitches I had but I can see them on my skin, a neuro saw them and told me that it was myokymias and not fasciculations.
After that, I wasn't reassured and decided to go to an als specialised center and neuro only done a clinical exam which came normal and told me that as I have done EMG just before, he wouldn't do another emg and that I had no ALS!! But I do not trust him because I am in a constant pain when I am walking and even when I do nothing and am rested.
All neuros found hyperreflexia, no babinsky signs, no weakness, no spasticity and no amyotrophy, no pyramidal syndrome surely because it is too early. For them, pains are not related to als, it is an unusual symptom and as my emg and clinical exams are normal, it is stricly impossible to have ALS.
When I see als forum, I may have upper neuron problems (hyperreflexia, limbs problems) and lower neuro problems (twitches...) but I am not and expert.
I should be optimistic but I am really dealing with walking problems.
I am really scared actually because of these difficulties to walk, the muscular pains and my permanent spasms all over my body and when I think about it, it is really similar to als symptoms.
I would like to know if such kind of symptoms can be the beginning of als and if EMG can detect early problems like denervations, fibrillations...I saw that EMG could not detect upper neuro problems early, only lower. Am I wrong? Hope I am clear in my questions and thinkings, and thanks in advance for your answers.