pbrennecke
New member
- Joined
- Jan 28, 2016
- Messages
- 1
- Reason
- Learn about ALS
- Country
- CH
- State
- Zurich
- City
- Zurich
Dear all,
I am hear seeking your advice (so far i have not been diagnosed with ALS).
Shortly to my story.
It all started with tigh twitches in october 2015- this twitches then spread over the whole Body (still today); furthermore i have symmetrical muscle wasting (neck, hands, arms, thighs, feet, also thenar muscles)
I had EMG,Ncv and mEP in Feb, with no signs of MND- and with that i am no left alone.
The atrophies and twitching continues, but the neuro Prof. Didnt look like to much interested in my muscle loss?
What to do? I am scared that this could still be ALS but is not (yet) detetable...
and what should i do with the atrophies (so far no clinical
I am very glad for any kind of hint/answers
Thanks to all of you!
Patrick
I am hear seeking your advice (so far i have not been diagnosed with ALS).
Shortly to my story.
It all started with tigh twitches in october 2015- this twitches then spread over the whole Body (still today); furthermore i have symmetrical muscle wasting (neck, hands, arms, thighs, feet, also thenar muscles)
I had EMG,Ncv and mEP in Feb, with no signs of MND- and with that i am no left alone.
The atrophies and twitching continues, but the neuro Prof. Didnt look like to much interested in my muscle loss?
What to do? I am scared that this could still be ALS but is not (yet) detetable...
and what should i do with the atrophies (so far no clinical
I am very glad for any kind of hint/answers
Thanks to all of you!
Patrick