Ohiogirl
New member
- Joined
- Mar 3, 2016
- Messages
- 2
- Reason
- DX MND
- Country
- US
- State
- Ohio
- City
- Hamilton
Hello everyone. . just wanted some feedback from someone who has experienced the ALS journey. I started having fasciculations mainly in my legs about three months ago. I was referred to a neurologist and had several testing done. I have an elevated CK level that is chronic and I had an abnormal EMG in my legs. All other tests have been normal (MRI, other bloodwork, lumbar puncture). I am scheduled for a muscle biopsy next week. I have ataxia, weakness and fatigue. I know walk with a cane and live on the couch due to my condition. Has anyone else on this site experienced these problems? I know I have a motor neuron disorder but not sure which one. Any help is appreciated. Thank you.