Terimolinaro
New member
- Joined
- Jan 17, 2016
- Messages
- 8
- Reason
- Learn about ALS
- Country
- US
- State
- Ca
- City
- Auburn
Hello,
This is my second post. I am a 44 year old woman. My symptoms started four years ago with foot drop. About three months after that I started having a severe problem swallowing solids and liquids. Since then, I have two podiatrists and my PCP along with a gastrologist. I have had muscle wasting in my lower left leg, the only pain that I have is from not being able to walk correctly.
I was referred to a neurologist back in October and he ordered an MRI of my cervical and lumbar spine as well as a nvs end emg and a swallow study.
This is my concern, after he performed the ncs and emg, he said he was highly concerned that this is Lou Gehrig's disease. At that time I new absolutely nothing about this disease. He ordered a bunch of lab tests that I believe came back normal, MRI of cervical lumbar, thoracic spine and brain. Brain came back normal, and there was some evidence of compression in the back. I have no numbness or tingling. The best I can describe my leg problem is loss of function. The neurologist said my nerves tested healthy but my muscles did not.
My neurologist wants to see me every three months, my question is should I be pressing for another opinion, doing something more. Is it normal for the neurologist to have me wait and see?? I am trying not to be so worried and keep going on with every day life, but it is difficult. From what I have read on here, if it is Lou Gehrig's, I would think it is really slow progression.
I do not want to waste precious time, any thoughts on this from those who have been through this would be much appreciated. Thank you four your time.
This is my second post. I am a 44 year old woman. My symptoms started four years ago with foot drop. About three months after that I started having a severe problem swallowing solids and liquids. Since then, I have two podiatrists and my PCP along with a gastrologist. I have had muscle wasting in my lower left leg, the only pain that I have is from not being able to walk correctly.
I was referred to a neurologist back in October and he ordered an MRI of my cervical and lumbar spine as well as a nvs end emg and a swallow study.
This is my concern, after he performed the ncs and emg, he said he was highly concerned that this is Lou Gehrig's disease. At that time I new absolutely nothing about this disease. He ordered a bunch of lab tests that I believe came back normal, MRI of cervical lumbar, thoracic spine and brain. Brain came back normal, and there was some evidence of compression in the back. I have no numbness or tingling. The best I can describe my leg problem is loss of function. The neurologist said my nerves tested healthy but my muscles did not.
My neurologist wants to see me every three months, my question is should I be pressing for another opinion, doing something more. Is it normal for the neurologist to have me wait and see?? I am trying not to be so worried and keep going on with every day life, but it is difficult. From what I have read on here, if it is Lou Gehrig's, I would think it is really slow progression.
I do not want to waste precious time, any thoughts on this from those who have been through this would be much appreciated. Thank you four your time.