peet
New member
- Joined
- Feb 9, 2016
- Messages
- 9
- Reason
- Learn about ALS
- Country
- CZ
- State
- Czech Republic
- City
- Prague
Hello,
I have been a lurker here (and at aboutbfs.com) for good few months. I have been trying to convince myself about BFS and did not want to write panic posts after every new twitch hotspot - which I have many by now - until I attended my first EMG test today.
The test was scheduled to rule out MND and confirm suspected BFS. However - the test did not go very well. The doctor said she could not rule ALS out because, she says, most likely, my muscles are not relaxed enough. She tested needle in lower leg and 3 or 4 places above my knee - in all cases, without any contraction, there was this quite regular tap tap tap clicking or popping sound. She left the needle in for minutes and I felt relaxed (apart from being sweaty stressed) but nevertheless the machine kept on popping in this rhythmic sound (~2 per sec)....
At the end she said I need to come back and see some other doctor for second opinion. I was already anxious to hear that but whenI googled stuff back home (including alsforum) I discovered it IS THE ACTIVITY AT REST which counts and should not occur in healthy muscle.
I do not know if it is indicator of ALS but it sounds like it and the fact she wants me to come back and have the same test with another doctor is very odd and makes me think she SAW what I am afraid of but does not want to say until confirmed by somebody else.
Now - more that ever - I am really scared and would welcome feedback on how much is the sound of EMG during muscle rest indicating I am in deep trouble.
Kind Regards,
Petr
I have been a lurker here (and at aboutbfs.com) for good few months. I have been trying to convince myself about BFS and did not want to write panic posts after every new twitch hotspot - which I have many by now - until I attended my first EMG test today.
The test was scheduled to rule out MND and confirm suspected BFS. However - the test did not go very well. The doctor said she could not rule ALS out because, she says, most likely, my muscles are not relaxed enough. She tested needle in lower leg and 3 or 4 places above my knee - in all cases, without any contraction, there was this quite regular tap tap tap clicking or popping sound. She left the needle in for minutes and I felt relaxed (apart from being sweaty stressed) but nevertheless the machine kept on popping in this rhythmic sound (~2 per sec)....
At the end she said I need to come back and see some other doctor for second opinion. I was already anxious to hear that but whenI googled stuff back home (including alsforum) I discovered it IS THE ACTIVITY AT REST which counts and should not occur in healthy muscle.
I do not know if it is indicator of ALS but it sounds like it and the fact she wants me to come back and have the same test with another doctor is very odd and makes me think she SAW what I am afraid of but does not want to say until confirmed by somebody else.
Now - more that ever - I am really scared and would welcome feedback on how much is the sound of EMG during muscle rest indicating I am in deep trouble.
Kind Regards,
Petr