help1127
Active member
- Joined
- Nov 19, 2013
- Messages
- 95
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- FL
- City
- Orlando
I have been dealing with muscles twitches for over 3 years now. Have seen 4 neurologists, now sticking with my Dr at USF who wants to see me every 3 months. EMG's performed by nuromuscular specialist in ALS showed no evidence of MND and was told it was good. 3+ reflexes continue the same with no other clinical issues.
I have had 2 other EMG's by 2 other non nuromuscular neurologists that found issues with nerves from my back. I do have a compressed fracture and mild stenosis of L5-L6 plus other bulging and herniated disks in the cervical area.
Been going thru bouts of shortness of breath where I feel that I can't catch a full breath. Also alot if yawning but can't complete the yawn as I can't catch all thelse air at times. Seen a pulmonologist my PFT is good FVC is at 100%. Sleep test showed moderate obstructive sleep apnea and I'm scheduled to test how I do with the CPAP.
My neuro doesn't think it's ALS or neurological related. I do suffer from anxiety and depression. But never had the shortness of breath.
I'm just tired of the continuing issues that keep popping up. Lack of energy, fatigue, tired, sleepy, twitching all over, neck pain, lower back pain, shortness of breath. Any advice would be helpful, and I know you are helping by answering and that you have been diagnosed. So thank you.
Stephen,
I have had 2 other EMG's by 2 other non nuromuscular neurologists that found issues with nerves from my back. I do have a compressed fracture and mild stenosis of L5-L6 plus other bulging and herniated disks in the cervical area.
Been going thru bouts of shortness of breath where I feel that I can't catch a full breath. Also alot if yawning but can't complete the yawn as I can't catch all thelse air at times. Seen a pulmonologist my PFT is good FVC is at 100%. Sleep test showed moderate obstructive sleep apnea and I'm scheduled to test how I do with the CPAP.
My neuro doesn't think it's ALS or neurological related. I do suffer from anxiety and depression. But never had the shortness of breath.
I'm just tired of the continuing issues that keep popping up. Lack of energy, fatigue, tired, sleepy, twitching all over, neck pain, lower back pain, shortness of breath. Any advice would be helpful, and I know you are helping by answering and that you have been diagnosed. So thank you.
Stephen,