smoki611
Member
- Joined
- Jan 8, 2016
- Messages
- 11
- Reason
- Loved one DX
- Country
- US
- State
- NH
- City
- plaistow
My friend had many blood test, breathing test, MRI of the spine & neck (not the brain and don't know why) EMG (the person who took it asked if she had polio because it looked like post polio & no she never had polio. They said they do no think MS, Lyme, RA. The Neurologist said it is MND & he thinks it is ALS/Life threatening disease, He does not know where to go from there so we are headed to Boston Brigham's & Woman's to a top Neurologist recommended by him. It has taken 3 months to even get this appt in a few weeks. I can't believe that a doctor says it is a life threatening disease take 3 months to see the doctor.
I might add some interesting info. She has had a hard time walking for about 10 years but chalked it up to the weather, age 46! The last year it has got much much worse
She is a size 6, 46 years old. The bottom of her feet this week feels like she is walking on nails. She does have Raynaud's Disease and has that for many years.
One question I do have is can you have these symptoms if it is ALS? How long before if gets worse?
Thank you for any information you can give me.
I might add some interesting info. She has had a hard time walking for about 10 years but chalked it up to the weather, age 46! The last year it has got much much worse
She is a size 6, 46 years old. The bottom of her feet this week feels like she is walking on nails. She does have Raynaud's Disease and has that for many years.
One question I do have is can you have these symptoms if it is ALS? How long before if gets worse?
Thank you for any information you can give me.