Hello. I have been reading on this site for weeks. I have been very anxious about my symptoms, but just today experienced something that has me very panicked. I am hoping someone can read this and let me know what they think.
Brief background - starting twitching late October 15. EMG done on limbs and hands (no throat or tounge) 11-3 and was clear. Neuro told me to go home and take a Xanax.
After that my tounge started twitching (while at rest in my mouth) and I called the Neuro who said they would not see me again and I needed to go to a specialist.
I saw an ALS specialist at Robert Wood Johnson yesterday. She scheduled EMG for 1-11, but told me she does not think I have als.
However, on Saturday I also started getting hoarse and my voice is still hoarse today - no better. I wasn't concerned at first because I had a sore throat, but all other symptoms are now gone and I'm still hoarse. Specialist said not to worry if I'm not slurring, which I don't think I am, but I've read hoarseness can precede slurring.
Just today, I had the odd sensation that water was coming to come out my nose after drinking, and I then sneezed. Of course I then read that nasal regurgitation is an early bulbar symptom and often comes with hoarseness. Now I'm panicked. I then to test it out guzzled a whole bottle of water and no sneezing or water coming out my nose.
I'd appreciate any thoughts. I have two little kids I love more than life and I'm scared.
Brief background - starting twitching late October 15. EMG done on limbs and hands (no throat or tounge) 11-3 and was clear. Neuro told me to go home and take a Xanax.
After that my tounge started twitching (while at rest in my mouth) and I called the Neuro who said they would not see me again and I needed to go to a specialist.
I saw an ALS specialist at Robert Wood Johnson yesterday. She scheduled EMG for 1-11, but told me she does not think I have als.
However, on Saturday I also started getting hoarse and my voice is still hoarse today - no better. I wasn't concerned at first because I had a sore throat, but all other symptoms are now gone and I'm still hoarse. Specialist said not to worry if I'm not slurring, which I don't think I am, but I've read hoarseness can precede slurring.
Just today, I had the odd sensation that water was coming to come out my nose after drinking, and I then sneezed. Of course I then read that nasal regurgitation is an early bulbar symptom and often comes with hoarseness. Now I'm panicked. I then to test it out guzzled a whole bottle of water and no sneezing or water coming out my nose.
I'd appreciate any thoughts. I have two little kids I love more than life and I'm scared.