Old 11-30-2015, 09:47 PM #1 (permalink)
New Member (Say Hi)
 
Join Date: 2015
City: Ann Arbor
State: MI
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3
Delaney is on a distinguished road
Delaney Delaney is offline
New Member (Say Hi)
Join Date: 2015
City: Ann Arbor
State: MI
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3
Delaney is on a distinguished road
Default Thank you for your time. A lingering concern.

Good evening to all,

I have read the information and rules and will be brief. I feel the level of experience of everyone here is invaluable.

I am a 44 year old female. I have had what has felt like twitching/pulsating/vibrating sensations in my throat since the end of June. This followed some leg tingly and weakness that subsided. Back issues upon further investigation, explained a bit more of my leg issues.

Troubling me most is the ongoing throat issues. I have seen an ENT and been given an exam, flouroscopy swallow test, and soft tissue ct scan of the throat (negative). Also, I have pursued a visits with a Neurologist whose specialty is EMG testing. She is not a neuromuscular neurologist, but a very good neurologist. She sent me for a litany of bloodwork, including MG, RA, Proteins, on and on. No blip.

What worries me about the throat issues is the fluttering that comes on in waves. And it radiates to my neck and lower throat. The 2nd of my two appointments with the neurologist included an EMG of my upper and lower limbs. Also a nerve conduction test. She told me these were clean, and the results are "final." She uses the word "final" often. I was also tested for Lyme, because the throat symptoms seemed to mimic those sx. Again nothing.

I have read carefully, several places on this forum, that clean EMG - no ALS. Also that in the stickies addressing folks who have said they had ALS with clean EMG's to be far fetched and questionable. I was in line with this thought - and have tiny doubts with regards to Bulbar. Especially when it comes to women.

Should I accept that this truly is some other issues albeit anxiety or heart or ? and close the door on this ALS shadow looming? Or revisit?
My wife thinks its time, but I really felt I wanted to address it towards people here who know this subject very well.
Thank you for your time,
Delaney
Delaney is offline  
Old 11-30-2015, 09:58 PM #2 (permalink)
Senior Member
 
Join Date: 2015
City: Sandyville
State: WV
Country: US
Diagnosed: 04/2015
Interest: I have been diagnosed with ALS.
Posts: 629
BlueandGold is a jewel in the roughBlueandGold is a jewel in the roughBlueandGold is a jewel in the roughBlueandGold is a jewel in the rough
BlueandGold BlueandGold is offline
Senior Member
Join Date: 2015
City: Sandyville
State: WV
Country: US
Diagnosed: 04/2015
Interest: I have been diagnosed with ALS.
Posts: 629
BlueandGold is a jewel in the roughBlueandGold is a jewel in the roughBlueandGold is a jewel in the roughBlueandGold is a jewel in the rough
Default Re: Thank you for your time. A lingering concern.

I don't see ALS in your symptoms at all. Those "feelings" you describe are likely just that, feelings. If it were bulbar you would have certain inabilities as the muscles are affected. You would likely experience swallowing difficulties and/or slurred speech. Wouldn't be feelings but anatomical malfunction. I understand your fears but from what you describe I don't think ALS should be on your list.

All the best to you,

Vince
BlueandGold is offline  
Old 11-30-2015, 10:10 PM #3 (permalink)
Atsugi's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2011
City: Orlando
State: Florida
Country: US
Diagnosed: 12/2010
Interest: I lost a loved one to ALS/MND.
Posts: 4,952
Atsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond repute
♥ Atsugi Atsugi is offline
Extremely Helpful Member
Forum Moderator

Atsugi's Avatar
Join Date: 2011
City: Orlando
State: Florida
Country: US
Diagnosed: 12/2010
Interest: I lost a loved one to ALS/MND.
Posts: 4,952
Atsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond reputeAtsugi has a reputation beyond repute
Default Re: Thank you for your time. A lingering concern.

No ALS there, Delaney. The EMG is, indeed, final.

Stick with your doctors until you're satisfied. But don't worry about ALS.

I wish I could diagnose you or tell you what the problem is, but 1) I'm not a doctor, and 2) we have to give our time to those who are dealing with ALS, which you're not.

Good luck. Get better. --Mike
Atsugi is offline  
Old 11-30-2015, 10:17 PM #4 (permalink)
New Member (Say Hi)
 
Join Date: 2015
City: Ann Arbor
State: MI
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3
Delaney is on a distinguished road
Delaney Delaney is offline
New Member (Say Hi)
Join Date: 2015
City: Ann Arbor
State: MI
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3
Delaney is on a distinguished road
Default Re: Thank you for your time. A lingering concern.

Thank you, Vince and Mike - you sweet guys.
Delaney is offline  
Old 11-30-2015, 11:28 PM #5 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,549
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is online now
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,549
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: Thank you for your time. A lingering concern.

One last one piling on. I know bulbar ALS very well as my husband had it.

Your throat issues are not even remotely like the onset of bulbar issues and I truly hope this puts your mind at ease.
affected is online now  
Old 12-01-2015, 06:54 AM #6 (permalink)
New Member (Say Hi)
 
Join Date: 2015
City: Ann Arbor
State: MI
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3
Delaney is on a distinguished road
Delaney Delaney is offline
New Member (Say Hi)
Join Date: 2015
City: Ann Arbor
State: MI
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 3
Delaney is on a distinguished road
Default Re: Thank you for your time. A lingering concern.

Thank you, Tillie, for responding. You would know very well. I will take this very much to heart.
Delaney is offline  
Closed Thread

Tags
anxiety, back, bulbar, clean emg, emg, female, flu, heart, information, lyme, neurologist, swallow, symptoms, test, testing, twitching, wanted, weakness, women


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
A new concern Arska Do I Have ALS? Is This ALS? 3 11-11-2015 02:13 PM
Some Questions for Concern AndrewAgnew01 Do I Have ALS? Is This ALS? 3 08-20-2015 10:30 AM
Men's Concern? Bad Balance Other 0 10-29-2013 06:51 PM
Final stages and lingering almondjoy In Memoriam/In Memory of 47 04-17-2012 10:29 AM
ALS concern habeeb2005 Do I Have ALS? Is This ALS? 14 11-22-2011 03:17 PM
A Concern js58 Do I Have ALS? Is This ALS? 6 02-19-2011 08:52 AM
Question/Concern Buckeye25 Do I Have ALS? Is This ALS? 8 09-25-2010 10:20 AM
Concern for our son stacey76 Current Caregivers (CALS) 3 09-23-2007 05:41 PM
ALS concern: please help! lilly General Discussion About ALS/MND 21 08-24-2007 01:15 PM
Concern please help RAidanM General Discussion About ALS/MND 3 12-16-2006 04:46 PM


All times are GMT -5. The time now is 03:45 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016