I confuse every Dr that sees me lol

[jennduvall]

Hi everyone, I'm new and would just like to say my heart goes out to everyone. I've been going through a lot and seeing a neuromuscular specialist at UCLA on the 21st of December. My neuro suspects ALS but doesn't want to place the diagnosis without being positive. I have severe all over body atrophy, my muscles have shrunk tremendously. I try and laugh about how my arms look like a ripped 10 year old when I flex, rest of the time they look very sickly to me. Can I post pictures here? I just wanted to send love to all here because going through this scare I can't imagine how much strength each and every one of you have. I admire you and wish I could make this disease disappear, for it to never have existed. I'm really anxious for my appointment and so tired of the pain and pain medicine that I'm also thankful for because it gets me through the day. I do have a quick question, I hope no one minds. Has anyone had cervical problems from it? I have severe stenosis that no surgeon will touch because I'm too risky. I wish you all the best and know you wish for some magical thing, anything, I'm wishing for you also.

 

[gooseberry]

My husband has cervical stenosis but if/when they do the cervical spine/brain mri they will be able to tell if it is the cause of your troubles. He has had issues with stenosis for 30 years and it has nothing to do with his als.


Best of luck at your appointment. No one wants this diagnosis but everyone wants to know what's wrong.